Hi my name is Chris and was recently diagnosed with cluster headaches.
Before NY doctors appointment I was convinced I had an aneurysm or tumor.
So thank God it turned out to be CH, never thought I'd say that, and am trying to figure out my path.
My GP said h3 thought it was CH but referred me to a neurologist. Neurologist asked a bunch of questions and agreed it was CH.
I've tried D3, loratidine, caffeine, praying, and sumatriptan. I still take D3, loratidine, have an emergency caffeine drink of 200mg in my room at all times, and sumatriptan. The sumatriptan seems to be the one that works. It takes me frim a 10 to 0 in about 5 to 10 minutes.
I plan on asking for high flow oxygen at my next appt in a couple weeks. The N also gave me Depakote but I feel weird about that. Mushrooms aren't for me because I'm a federal employee and work for DoD.
Do have federal BCBS though. Anyway that's my story so far thanks for listening. Good luck to you all.
