Greetings from the "Mile High" here in Denver!
I was diagnosed with CH about 15 years ago. In that time, I've found quite a bit of relief with "traditional" methods (verapamil, steroids, melatonin, etc). Usually my cycles are limited to 1-2 times a year, 4 weeks per cycle.
But in recent years, I've noticed a more pronounced connection between my headaches ... and my *nose.* Instead of a sudden onset of pain, following those "set your watch by it" cycles ... It's more of a lingering "on the edge" of a CH pain, that is always sourced to my left nasal cavity. It feels as if there's a nerve being triggered every time I breathe in. Sometimes that pain will advance to a full "attack," other times it's just an all day "on the edge" feeling.
I mentioned this to my Neurologist, and then went to an ENT Doctor, who right away asked about "Sluder's Neuralgia." I've since had septopasty for a severely deviated septum. Not sure if this might help.
I'm just wondering if anyone else has experience pain and CH that are triggered *in the nose* and what your experience/treatment/outcomes were?
BTW, I'm also a morning news anchor out here in Denver, and had a GREAT time showcasing the work of Cluster Busters for an on air segment!
Thoughts, advice, comments?
Cheers,
Chris Parente
