aaw96

Yes, my girlfriend says she can see my looks like it gets pulled back into my head and looks swollen. Light makes my head hurt worse when I’m in an attack. My eyes run constantly during an attack. I’m constantly pacing during one too, especially at night. I haven’t slept a full 8 hours in almost a year. I’m lucky if I get an hour of sleep, I wake up all the time with a headache especially if I dream. I haven’t tried oxygen yet, a new doctor I just saw is wanting me to try that. I’ve done imitrex injections and sumatriptan nasal spray. I’ve done steroids, I feel great when I’m taking the steroids but once I’m done with the pack - my attacks are worse. I’ve done indomethacin, I’m on gabapentin right now and have been for almost 2 years. I’ve done nerve block shots in my head. I’ve been to a chiropractor. I’ve tried TMJ injections in my jaw and down my shoulder. I’ve tried Ubrelvy. nothing has helped consistently. It either works mildly and then my attacks come back even worse or they don’t work at all. I haven’t felt relief in anything for 4 years now… I’ve also done physical therapy.

I’ll list all my symptoms and this is what I tell doctors and the results have been cluster headaches and TMJ and trigeminal neuralgia. my symptoms have been: pain/headache on the right side of my head, stemming down into my eye socket (feeling like it’s being pulled back into my head) and into my jaw. After I have an attack which is now at least 15 times a day and lasts at minimum an hour to 8 hours at a time, my head feels bruised. Brushing my hair causes a headache, it’s so sensitive. My neck muscle protrudes out and you can feel it throbbing if you touch it. Does everyone have a job or are you guys on disability? I haven’t been able to keep a job and I’ve been denied disability, I’m lost on where to find something I can do. My pain is constant and headaches happen every single day.

Thanks everyone. does everyone constantly feel neck pain and shoulder blade pain? Like your muscles are cement tight. or is there absolutely no relief with this? I don’t even know if I have clusters, I feel like it’s not but my doctors are convinced that it’s clusters.

In 2020 I was in a demolition derby and I hurt my back pretty bad. Shortly after that I started getting headaches, I’ve been to every kind of doctor, tried every kind of medicine. I also have severe jaw and neck issues where I can’t even turn my neck a certain direction or hold my mouth open for too long or I’ll get a headache. I can’t sleep at all. Everything seems to trigger a headache, certain things will work temporarily and then other time it triggers one. I’m losing my mind. Has anyone else experienced all of this?