I used to be super active. Rode horses, distance runner, Olympic weightlifting. But over the years I’ve lost more and more of myself to the beast.
For me, any exercise that gets my heart rate up means I can feel every pump of my heart as an explosion in my face. Bending over has the same effect, anything that sends the blood to my head is a hard no. I try to do what I can when I’m out of a bout. Two years ago I slowly jogged two miles! But any strength or stamina I build I lose once I hit cluster season. It’s really demoralizing. So mostly I walk, at a slow gentle pace. During an attack I pace. Got to find a sweet spot of gentle movement while not aggravating things.
I stopped all alcohol and caffeine a year ago. I’m realizing the caffeine was a mistake and have slowly been reintroducing it.
I wish there was a rule book of exactly what to do and what not to do.