LostCity

Just wanted to chime in and say this condition is truly confusing and so bizarre. I wish it had more research and funding. I want to get to the bottom of why we suffer from this, why weather patterns play a role, why sleep is affected, etc. I have so many damn questions about this bloody disorder..

I have tried tiger balm and it definitely can reduce pain very slightly but sadly doesn't abort anything.

Going on my 10th year as a Clusterhead this 2025. Always been a lurker in the shadows (no pun intended) Figured I'd actually join a forum and involve myself more. Just wanted to say hi, and thank everyone over the years for sharing their experiences and advice. I have learned more from the community than my own doctors and medical professionals. I know how alone and isolating this condition can feel and decided I should network more, So hey /wave