susie1984

So sorry to just be coming for advice again rather than actually offering anything but it's been a horrendous couple of weeks. I was kept in hospital for a couple of nights after the last post but did get a CT scan which was clear, saw a neurologist who referred me for an MRI. Had that on Sunday, which was very quick for the NHS. He also prescribed verapamil and sumatriptan injections on discharge although he's not convinced about a cluster headache diagnosis because of my age. Things had been slightly better - not great but I've been functioning. Today's been awful though, I've got immense pressure in my head all the time that won't ease as well as the cluster headache symptoms. I went for an ECG yesterday to check that I was OK to continue with verapamil - at my GPs who are never great - and after checking my notes it says I have a T syndrome abnormality - has anyone had that before and were you able to continue with verapamil. My blood pressure was also much higher than normal. None of which was discussed with me but that's par for the course to be honest. I've also started having a weird reaction to the Sumatriptan injections - the pain moved all over my head but its really immense and not like any reaction I've ever had to triptans before - should that be worrying me? In between that the pain flare ups still feel like cluster headaches - it's definitely my trigeminal nerve. Any advice would be appreciated because I'm a bit scared and lost at the moment

Thank you for all the replies - the sharp bursts of pain definitely sound like cluster headaches but the background pain seems too severe to be shadowing - could I have something else going on at the same time? Tbh in the background it does feel like that initial flare up of my chronic migraine from what I remember but now with cluster headaches too. I have had a look at the treatments recommended in the first post - thank you very much for that. However my vision has started to go blurry this afternoon so I've come back to A and E (I'm in the UK) as I'm a bit worried now. Prior to that I had booked a private neurologist appointment too to try and get some appropriate treatment.

Hi, have just come across this forum as I'm trying to work out what is happening with this new horror with my head. I had suffered from classic episodic migraine with aura since my teens, which was mainly manageable until about six years ago when I had a major flare up and several hospital trips and many tests. In the end the diagnosis was chronic migraine and the pain never actually went away until I was finally approved for Botox to treat it which has mainly kept it under control. Now about 2-3 weeks ago I have started with these new episodes which seem to fit the description of cluster headaches. They fit the description in that they are intensely, ridiculously painful, start behind my left eye and radiate down my face into my jaw and teeth and nothing is relieving them. They were at approximately the same time every evening though and now they seem to have progressed to random times throughout the day. Is this normal? Also is it normal to have pain in-between attacks, just to a lesser intensity? And I have a permanent metallic taste in my mouth and my tongue keeps tingling sporadically - is this a cluster headache symptom. Apologies for all the questions - just trying to find the likely diagnosis and any treatment that might help slightly before my life implodes again like it did last time!