Hi everyone — really glad I found this group.
I just started a new cycle 9 days ago and the attacks have been way more frequent and intense than my usual pattern. I’m on verapamil, and I restarted Emgality when the cycle began, but I’m now 8 days out from the injection and still waiting for it to kick in.
My biggest issue has been oxygen. It should’ve been my lifesaver, but getting it has been a nightmare. My neurologist left the practice, the new one hasn’t responded in days, and my primary care isn’t helping either. I’ve been calling everywhere and still can’t get a script.
It feels like no one understands the urgency — they hear “headache” and think it’s no big deal.
What do you all do when you need O2 fast but the system drags its feet?
Any advice would mean a lot.
