I was diagnosed with CH this month. I kept thinking I had sinus problems because of the stuffy nose and pain behind my eye. Looking back over the years, I now realize that I may have been experiencing CH for years, but now, at age 62 it is much worse! They started when I got home from hiking to the top of Mt Kilimanjaro (19300 ft).
My neurologist has prescribed low dose of Verapamil and Zomig nasal spray (which I can't take until my MRI has been read). She said getting Oxygen in nearly impossible.
As the rest of you, I have found that over-the-counter pain meds have NO impact at all, so I quit taking them.
The only thing I have found that stops the CH is 16 minutes running on the treadmill. Even when I wake up at 1:00 am, it works immediately (forget about sleep for awhile).
Has anyone else had experience with CH past the age of 60? triggered by high altitude? Relief via vigorous exercise for 15 minutes?
What about Verapamil? Zomig?