Hello, I've been dealing with CH for about a year now. I am fortunate to enough to have found out that I have been accepted into a Phase 3 FDA clinical research study but - double blind so still a crap shoot. I start on Friday.
I have been chronic stage since July 12th and am finding it difficulty to eat anything because it is a struggle to chew without the nerve pain being overwhelming. I am considering botox injections around the jaw since the medications don't seem to be effective in relieving the pain - thoughts, recommendations? If anyone has tried it - heard about it, please let me know - It is only $10 around here so it would be worth it if someone had good experience with it.