Clusterbug Posted May 20, 2023 Share Posted May 20, 2023 Hi folks, I was diagnosed with Episode Cluster Headaches about 6 years ago. I’m currently in the middle of a cluster and are taking verapamil, prediscone, injectable sumatriptan amd amitriptyline. My headaches this cluster have been on the left side of my head. Today, they moved to the right side. Is this a good sign? Quote Link to comment Share on other sites More sharing options...
jon019 Posted May 21, 2023 Share Posted May 21, 2023 ...OXYGEN!!?....dump the amitriptyline, worthless 5 Quote Link to comment Share on other sites More sharing options...
CHfather Posted May 22, 2023 Share Posted May 22, 2023 For some people, side-switching might indicate a change in the cycle. For others, it's just another thing that happens. It's not common, but not super-rare. What jon said -- you want oxygen for stopping your attacks. The more you use the injectable sumatriptan, the worse things are likely to get -- more, longer attacks, longer cycles .... And prednisone should be limited to once a year (a taper of two or three weeks). And the amitriptyline is, indeed, probably useless. Get oxygen (Read about that and other things here: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/) For now, split the injections when you use them: https://clusterbusters.org/forums/topic/2446-extending-imitrex/ Start the vitamin D regimen, which has helped many hundreds, if not thousands, of people with CH: https://clusterbusters.org/forums/topic/1308-d3-regimen/ Consider busting: Read about it at the end of this file -- https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ -- or by cliclking on "New Users -- Please read here first" at the top of any page (in the blue banner). 4 Quote Link to comment Share on other sites More sharing options...
gegibsonjr Posted May 22, 2023 Share Posted May 22, 2023 Everything that @CHfather said... I have had my CCH switch primary sides on several occasions with the first being after sinus surgery. I wouldn't say it's a good thing, just a change. Currently I am primarily right sided but there have been events that include the left side. I wish you all the best for finding PF days and nights. 1 Quote Link to comment Share on other sites More sharing options...
Axel_B Posted May 31, 2023 Share Posted May 31, 2023 Oh no! I have wondered about this at times of CH stress. My CH are right sided only 9 years in. I read this and dread the switching of sides. I like to think of my left side as a ‘ Cluster Virgin ‘ Please… no primary side switching. Let the left side stay torture free / bWell Quote Link to comment Share on other sites More sharing options...
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