alleyoop Posted October 19, 2013 Share Posted October 19, 2013 Elly, great to hear of Jan's success with his surgery!!! :) My memory is short...what was it, DBS? Thanks for keeping us abreast and for your generous offer. Don't be a stranger. Bobb Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted October 19, 2013 Share Posted October 19, 2013 I think he had ONS if memory serves me right??? I know a fellow survivor in Sweden might take them, I can ask? Glad surgery worked out. I have had about 5-10% improvement but that could just be cause of little stress. Keep us posted on the progress! Quote Link to comment Share on other sites More sharing options...
Pos1964 Posted October 20, 2013 Share Posted October 20, 2013 Indeed Jan had the ONS surgery @alleyoop, I keep reading the story's of all members here on the site. Jan has been lucky the surgery is a great succes, however, the CH is not cured, we are very aware of that but as long as the device helps, we're enjoying the PF time he has and hope it will be a long long time @CHS, sure you can ask a fellow survivor in Sweden if he or she wants the injections, just let me know if they're needed! Elly Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted October 21, 2013 Share Posted October 21, 2013 Elly, I have emailed him....His replies usually take a day because of time change and the Chs he is having... I will let you know as soon as he tells me. I will PM his address etc thank you Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted October 23, 2013 Share Posted October 23, 2013 Thank you so much for the offer and he was in tears for the offer but kindly declined. He has really bad side affects and uses a nasal spray. He had 4 DBS operations and a ton of complications and is chronic like me. He sent his sincerest gratitude and heartfelt wishes. I would take them but I am in Canada and the post office does not allow mailing of medications. I hope a survivor there can certainly use them. Very very very kind of you to offer. Here in Canada they are $140 at Shoppers drug store and I get them at Costco for $108 canadian dollars. So whoever is getting them is going to save alot of money. again kind regards. Quote Link to comment Share on other sites More sharing options...
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