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I asked an A.I. image generator to convey the dark agony of a cluster headache...

Pretty good and normally I would have said brilliant but recently I was ina consultation with my consultant who is the UK leading specialist on CH and she asked me 'what does it actually feel like'? I then realised how little she truly understood us. She read the books and carried outvsome experiments but ultimately it's just a topic of interest for her, not a desperate desire to have a normal life. In response to her question i said 'it's like being axed in the skull 8 times a day and still trying to carry on with life as best you can'. Her response was 'oh wow I've never heard it put like that ' Moral of the story.. we CHs need to stick together because nobody understands us not even the so called medical specialists who treat us

I found for me, imitrex were causing longer cycles and rebound Ch's really soon after each attack. Here is SA, they are no longer available as well. I think 02 is the best way. For me, Prednisone and loading D3 is helping. I went 1 week without an attack or shadow. I actually thought my season was over, but the other night I had 8 attacks at night. I don't know how to tell if the season is over anymore cos I used to count 7 days and if I'm completely pain free after the 7th day, I know it's over. Now I'm not sure anymore. I don't get day time attacks this season. Not 1. Just gets me at night. I think the timing of the Prednisone has to be spot on when I take it at 10 am everyday in-between food. That seems to be helping me this cycle. I have those rare nights with multiple attacks as mentioned above. Also noticed that it happens on a full moon always.