booboo

My husband has been an episodic sufferer for 22 years. When we met 24 years ago, he always had an issue with "dumping" right after eating. Okay stay with me here I have a point! He has been taking supplements and vitamins in high doses since before the Vitamin D regimen was implemented. We always knew his D levels were low since he would crave sitting in the sun and feel better after doing so. This past year has been an especially tough one for him. He had a really bad cycle, high pain levels and frequency and it took 5 busts to rid him of the beast. Although his attacks stopped, he had been in constant pain and agitation. Low energy, not sleeping well, head and neck pain, night sweats... and dumping. After much internet research (no trust of docs), he found this Dumping Syndrome. Outside of the fact he has not had gastric bypass surgery, he fit the description. Because his food was passing through too quickly, he was not absorbing nutrients effectively. We figured his love of craft beer might be a big culprit of his dumping. A month ago he stopped all alcohol and has stayed away from refined sugars. He feels like a million bucks! No more night sweats, higher energy levels, and his head ghost pain has mightily decreased! I am in no way saying he is cured of clusters...that would be a dream. However it has helped with this out of cycle ghost pains. I just wanted to share this to see if anyone else has experienced these symptoms or if this is just a one off case. The poop jokes may now commence... ;D

Thanks Guys and Gals. I'm going to have him try the Ginger, I ordered MammaJuanna (spoken about on another post) and maybe another dose of Vitamin M is in order. I don't know how you all stay so positive with such a horrible disease. Appreciate the advice.

Well Moxie that sucks! The only time he has some relief from the pain is after he runs. For a short time after his head feels clear. (well then and when he in on shrooms) We actually use the elliptical machine in our house to abort attacks. This works better then O2 and can get rid of one in 17 minutes (almost to the nose...every time).

So my husband has finally been able to stop the main cluster attacks with dosing (4x over 2 months), however he has been left with constant head pain. Probably a kip 1-2 (sometimes gets to 3) all the time. This cycle was a really bad one so he thinks its collateral damage from his hard hitting attacks (worst he has ever had). Has any else experienced this? If so is there some kind of remedy to give him relief? You guys are all so amazing on this site. More info that 1000 neurologists!