I have also been in the special "hospitals" because of CH. I made a poem once about it.
See their faces gather around
Cut of the shackles that hold me down
Looking at me with fear in their eyes
Knowing that I'm empty inside
I'm empty inside
I'm empty inside
And I want to die
The pain of CH is able to make even so-called normal people suicidal. So glad to hear you are finally getting treated for this disease. Good Luck!