Gaius

I think that applies to pretty much all governments. They should have to wear clown suits!

and give "3rd Stone From the Sun" a double meaning. I guess I'd be stoned on the "3rd Stone From the Sun"! ;D Hell, if it works & I can go, I'll go! But I saw a news article recently that said the Dutch Parliament is considering making "drug tourism" illegal. They're considering making it so only Dutch citizens could use the drugs sold there - no foreigners. > I wonder whether they would still ship things worldwide? (thanks Eli for the info)

Topamax should be called Dope-A-Max. Several years ago my neuro suggested I give it a try. It took only one dose to let me know that was not for me. I took it at bedtime and when I woke up the next I was so messed up there is no way I could've done anything requiring mental acuity or physical dexterity. That said, it has helped some people. You might want to go over to www.clusterheadaches.com and ask over there - they generally have more experience with pharmaceuticals. Hope the cycle ends soon for you.

Carolyn, Thank you so very much for the info! Amsterdam here I come!!!!! (When I have the money to go!) Gaius

Carolyn, Thanks very much for the information! I think the next time I take a vacation I know where I'll be going!!! Maybe even sooner than I had expected! Hope Andy gets and stays headache-free!!!! Blessed be!

Thanks Bob! So if I donate via check, should I just make it out Clusterbusters, or do you have a preferred name, e.g., "Clusterbusters, Inc."? Too afraid to try it myself due to the potential unpleasant interaction with law enforcement, but I am willing to donate. When, and if, legal, I would try it. Thanks again Bob for all your good work, as well as to everyone else making this research "legitimate". Many Blessings to you all!!!!!

I forgot add the addresses for Erowid & MAPS. Must be the clusters! Anyway, here they are: Erowid Center P.O. Box 1116 Grass Valley, CA 95945 donations@erowid.org +++++++++++++++++++++++++++++ MAPS 309 Cedar Street #2323 Santa Cruz, CA 95060 Phone: (831) 429-6362 Fax: (831) 429-6370 Not sure why MAPS, affiliated with Harvard (right?), has a California address, but that's what's on their website.

Hi all, I'm just wondering if anyone could post a list of mailing addresses for donating to research and support organizations? I hate ordering/paying for things online, I got burned bad once in the past (took forever to get cleared up) and since then I try my very best not to give my credit card info out online! So far I've only found a mailing address for Erowid (and they're not primarily for dealing with cluster headaches) and MAPS (also not mainly about "busting" CH, but more so than Erowid). Thanks everybody! PF days & nights to you all!!!!

OK. I'll call him or her Psilly Cybin. I think I'd prefer a her. ;D

I wish I had such a friend! :-/

Leslie, I think you're referring to "HIPAA" and its "Privacy Act". A patient has to give signed authorization for the release of his or her medical records. There are some exceptions - one is a "law enforcement investigation of criminal activity", and in those cases the law enforcement people can require that the docs do not tell you, even if you ask for all of your records and all instances where your medical information was given out, which is otherwise your right under HIPAA.

     I can't answer that question, I have no idea if they put your asking in the chart, or are legally required to report it to the "authorities". Who knows, maybe I'm on some list somewhere ....     But I figure the more these guys hear about this method, they may start really looking into it, seeing what they can do, etc. I figure maybe it would go like this:     Dr. Smith: "Dr. Jones, have you ever heard of psychedelics being used to treat cluster headaches? I have a patient who mentioned it and gave me some literature about it."     Dr. Jones: "You know, I did have a patient ask about it. He told me Harvard Medical School had done some research on it. I checked, and they did, and reported some success with it. There was also a study in Europe with a non-hallucinogenic drug, BOL, that showed great results."     Dr. Smith: "hmmmm. Maybe we should ask our colleagues at the next headache conference? I thought my guy was just some hippie nut job."     Dr. Jones: "I bet he wasn't."     The point being, the more we can get the medical community to be aware of these "busting" methods and "real" research that has been done, the more likely it is there will be more thought, research, trials, and the sooner a "legitimate" treatment with these things will be available to those of us for whom many of the other mainstream meds don't work.     But for the record, fear is the main thing keeping me from trying "busting".

You probably have, but if you haven't already, go look at www.clusterheadaches.com message board. I think at least 2 or 3 people have had the implant. If my memory is working right, the topics were "ONS" and "Occiptal Nerve" something-or-other. But PF thoughts, wishes, vibes, & prayers coming your way!!!! Hang in there!!! "If you're going through Hell, keep on going."

I'm just wondering if any of you have mentioned the clusterbuster methods to your doctors and what their reactions were? My GP immediately said "I'm not going to discuss anything illegal with you." My former neuro said, "you've got to be kidding me? Are you crazy?" I showed him some stuff about psychedelics for treating CH and it went straight in the trash, right then and there! My current neuro said, "I haven't heard much about it, but I will look into it." I haven't heard anything about it from him since then, but whenever I bring it up he changes the subject. In short, no doctor I know of (except maybe the MAPS docs and some in Europa) seems willing to really even discuss or think about the potential for the use of these "non-pharmaceuticals". I mean, I know they can't prescribe shrooms or LSD here in the US, but not even showing interest or a willingness to the possibilities is just plain discouraging and disheartening! :'(

All, I am such a dummy! I see on the list of different message boards there is one called cluster buster fundraising opportunities! I ain't got much to give, but some will surely find it's way to support this research!!!!