Frilling
-
Posts
16 -
Joined
-
Last visited
Posts posted by Frilling
-
-
Has anyone tried the newly FDA Approved Emgality shot for Episodic Cluster Headaches? If so, how has it been working? According to the FDA 300 mgs is needed for an onset of an attack.
-
Thank You so much! Columbus is only 45 minutes from us. I am DEFINATELY going to review the list.. My husband is in his yearly cycle right now. Like clock work.
-
Can anyone suggest where I can find a Neurologist in central Ohio for Episodic cluster headaches? The list of doctors listed on this website does not show one
in Ohio. I have both a husband and daughter with these yearly nightmares. Right now we hop from one neurologist to another - not finding one that specializes in that that type of headache.
-
Thank you Boatman for your response. I am sorry to hear the gammacore didn't provide any relief for you. Since it is a new product, I am sure insurance isn't going to cover it and didn't want to invest money in it if people have not been happy with the results. Like yourself it was nice to see a Cluster treatment method that FINALLY didn't involve some kind of drug get approved and on the market...but was cautiously optimistic.
-
Hi, Now that the FDA has cleared the Gammacore Non Invasive Nerve Stimulator I was wondering if anyone out there has used this yet and what
your thoughts are on it? I have both a husband and daughter that have episodic cluster headaches.
-
Thanks for the info Spiny. I guess the only true way to really know is Genetic testing. You are correct about having a head start on it. Both my mother in law and her granddaughter have Trigeminal Neuralgia. My husband is also episodic. Hopefully he can get signed onto the new Elli Lilly Study that is coming next month. I hope you have found something that has given you some kind of pain relief as you deal with this monster!
-
Thank you for your concern. I may not understand how horrific the pain is since I don't experience them myself..but I watch my husband go through it...now my daughter and it is unbearable to watch. I do believe it could be genetics. Our parents do pass on good and not so good genes.. How long have you had CB and have you found anything to provide you relief?
-
Not only does my husband have cluster headaches...now my 19 yr old daughter was just diagnosed with them! :'( Coincidence or genetics?
-
It appears this device is only treating people with the chronic episodes thus far and not the episodic. I am happy to see this is finally getting some attention!
-
New Device At Ohio State Wexner Medical Center Takes Aim At Cluster Headaches :
VITAMIN D REGIMEN
in General Board
Posted
My husband has Episodic Clusters...his cycle starts on or about June 1st . How soon should he start on the Vitamin D regimen?