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Frilling

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Everything posted by Frilling

  1. Has anyone tried the newly FDA Approved Emgality shot for Episodic Cluster Headaches? If so, how has it been working? According to the FDA 300 mgs is needed for an onset of an attack.
  2. Frilling

    Doctor list

    Thank You so much! Columbus is only 45 minutes from us. I am DEFINATELY going to review the list.. My husband is in his yearly cycle right now. Like clock work.
  3. Frilling

    Doctor list

    Can anyone suggest where I can find a Neurologist in central Ohio for Episodic cluster headaches? The list of doctors listed on this website does not show one in Ohio. I have both a husband and daughter with these yearly nightmares. Right now we hop from one neurologist to another - not finding one that specializes in that that type of headache.
  4. Hi, Now that the FDA has cleared the Gammacore Non Invasive Nerve Stimulator I was wondering if anyone out there has used this yet and what your thoughts are on it? I have both a husband and daughter that have episodic cluster headaches.
  5. Frilling

    Gammacore Non Invasive Vagus Nerve Stimulator

    Thank you Boatman for your response. I am sorry to hear the gammacore didn't provide any relief for you. Since it is a new product, I am sure insurance isn't going to cover it and didn't want to invest money in it if people have not been happy with the results. Like yourself it was nice to see a Cluster treatment method that FINALLY didn't involve some kind of drug get approved and on the market...but was cautiously optimistic.
  6. Frilling

    Husband now Daughter has CB !

    Not only does my husband have cluster headaches...now my 19 yr old daughter was just diagnosed with them! :'( Coincidence or genetics?
  7. Frilling

    Husband now Daughter has CB !

    Thanks for the info Spiny. I guess the only true way to really know is Genetic testing. You are correct about having a head start on it. Both my mother in law and her granddaughter have Trigeminal Neuralgia. My husband is also episodic. Hopefully he can get signed onto the new Elli Lilly Study that is coming next month. I hope you have found something that has given you some kind of pain relief as you deal with this monster!
  8. Frilling

    Husband now Daughter has CB !

    Thank you for your concern. I may not understand how horrific the pain is since I don't experience them myself..but I watch my husband go through it...now my daughter and it is unbearable to watch. I do believe it could be genetics. Our parents do pass on good and not so good genes.. How long have you had CB and have you found anything to provide you relief?
  9. New Device At Ohio State Wexner Medical Center Takes Aim At Cluster Headaches :
  10. Frilling

    New devise at OSU to treat clusters.

    It appears this device is only treating people with the chronic episodes thus far and not the episodic. I am happy to see this is finally getting some attention!
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