LJ

I know most of you have to use the welding O2 so your at the mercy on what they charge, but thats too much. Well actually Id pay hundreds as well but I work for a medical supplier so I get medical o2 at cost (Ive worked there 12 yrs and just found the o2 works via this website.lol) Anyway I was using so much I looked into the costs associated with the filling of all the o2 cylinders. The largest tank you can get is a H tank. Its about 5ft tall and weighs quite a bit (I have to use a hand truck to move it). It costs my company $7.40 to fill these tanks. Some of the smaller tanks are between $2-4.00's. Just wanted you all to know this stuff is cheaper than what you may think so use that as a tool when negotiating.

I haven't checked in a while but that doesn't mean I haven't been keeping up with you all on the boards. I just wanted to report that I've had 3 consecutive PF days! I had maybe 3 or 4 PF days in the last 5 1/2 months total but NEVER back to back. I read the beginning of this thread and remember the hell I was in, how freakin bad it was. Because of you all, this site, and of course my vitamins and seeds Im a new man. Thanks again to all of you. Especially those of you that took the time to email and message me. It really does make a difference.

I was in a boating accident where I was thrown out of the back of a boat moving around 40mph. Unfortunately my face was the first thing that hit. The water went into my left eye and at the time I thought it ripped out. I was blind for a minute or two then my vision returned, all good I thought. That night not even 6 hrs later the beast made his first visit behind the same eye. Ofcourse I thought it was a aneurysm from the accident and I was dying based off of the pain I felt. That was 11 yrs ago. I have no other CH'ers in my family. My mom is 100% Italian so that side is huge and my dads is bigger than average as well. Actually most dont even know what the hell it is. Linda - I have always done the pred but this yr it stopped working. I also have put on some weight from it. Listen to these guys. I am very new to this site but have already started busting with seeds and shrooms and it does work. good luck

Its been a few days and Im still having the pesky shadows through out the night with the occasional level 2. From where I was before the Vit M to now I didnt notice as much as a change as when I did with the HBWR seeds 8 days ago. Also I saw major slapbacks with the seeds, none with the Vit M on this last bust. Should I do the seeds again on the 5th day or do more of the Vit M (I took a gram on the 28th). Ive got both in my arsenal so it makes me no difference it just seemed that maybe the seeds were more effective.

Blasted the beast w/ vitamin M lastnight. My first REAL bust! Feel great today. Not looking fwd to the slapbacks but oh well. Its gotta get worse before it can get better right? It will be 5 months on 4/3 of headaches EVERY day so Im looking fwd to headache free days. -LJ

I havent dried out the vitamin M the way I should have and was wondering if you all have ever used a dehydrator? I dont want to take away from the affectiveness if this is a too aggressive approach. No CH's last night just super strong shadows that kept waking me. One shadow was almost as difficult to get rid of as a HA(never had one this strong that didnt turn into a headache). I continue to see positive results from the HBWR but today is day 5 and I want to mash these suckers into mush!

Relief is bliss but I want to finish these _uckers off while they are down! Since I have shrooms already and if indeed I still have HA's in 5 days Im going to do them. (I want to know if they'll work anyway bc I plan on growing, cant grow RC or HBWR seeds and you never know when they wont be available bc of some dumbass kids abusing them) Im drying the shrooms out and plan to grind and capsule them. How many capsules should I take or is it strictly by grams? Sorry if this is in the archives Spiny. I really have tried to read most but up until a few days ago I was just trying to survive this crap.

I know I keep replying to my "am I chronic" thread so if I need to start another you guys set me straight. Im almost 36 hrs after I took the HBWR seeds and Ive seen a big decline in the number and severity of my CH's. Last night it seemed I had shadows most all of the night into the morning (just 1 CH). How many days after will I know if I busted the cycle or does it vary? Tuesday will be my 5th day so I wanted to know if Im still getting HA's then should I take the next step up (shrooms)? Took my kids to the park today for a picnic. Havent been able to do anything like that in four months and I owe it to you all.

Need a little more help. I scored some shrooms but Im curious about the 5 day rule. I did the seeds yesterday and I know they had a affect bc I actually slept and my HA's today are different. (I just finished a 5hr lev 10 dance) Since it was just the seeds do I need to wait on the shrooms? Should I wait to see if I busted my cycle w/ the seeds?

For some reason I didnt think I could use that "kind". How are those prepared? do I have to wait till they are a certain size or color? I have to cook those right? I dont even know how many to take.

In my 5th day now of detox. Slept a total of 5 hrs in last 3 days. Getting absolutely hammered at night (every two hrs) with the occassional one or two during the day. Last night's were so bad it doesnt seem real. I feel hung over from what Im putting my body through between the stresses associated with these attacks and lack of sleep. Im so tired Im having a difficult time dealing with these boneheads from work that have no clue what Im going through! Im going to do the seeds tonight. Hopefully now that Im detoxed they'll have more of a effect. Damn I hope they work. If not I'll have to wait for the garden to grow. Can I wait that long? May have to take a trip to the virgin islands to get some of that rum unless someone knows where I can get some. Im in houston but Im prepapred to drive basically anywhere. Im sure this is frowned apon but Im desparate so Ive got no shame in asking. Either way thanks for listening. Feels good at least venting a little. BTW I have a order in for the 25LPM reg you all told me to get.

Thats what I was thinking, I'll stay off of it. Im using 15LPM with a non-rebreather mask. I was using a O2 percent lock mask (also called a venturi mask) before but did noticed a faster response with the non rebreather.

Thanks. Im not getting anymore CH's during the day so at least I can work like a normal human being. Even the night time attacks aren't as violent. I work for a o2 supplier in Houston so Ive been using the o2 throughout the entire duration of this never ending cycle. It seems to have lost its affect the more I use it though? Tomorrow is my 5th day of detox from the meds so I'll do my next dose of the HBWR tomorrow night. I stopped taking the Verapamil as well. Can I continue to take that during this period? If so do I continue to take daily around the year? Damn I cant wait to beat this freakin thing!

Hello all - new to the board but not to clusters. 31 yrs old my clusters started the night of a accident where I had facial trauma. After yrs of not knowing finally found a neuro who educated me on CH's. I always used the same steroid/verap combo she prescribed which seemed to do the trick. When it didnt i always stock piled trex inj and that got me by. This cycle however has been different. Started Nov 3rd and by the end of January I had cycled the pred 3x's going up to 150mg per day. Did I go chronic or was it rebounds from all the steroids ans trex? Ive had sub orbital injections, chiro, and even tried acupuncture (no telling how many different meds) and was gearing up for surgery. Im 4 straight months in and honestly was starting to give up. My wife found your site so I began researching, I found some much needed hope. I am detoxing right now which is so difficult.Sat night I tried the HBWR seeds where I saw some relief (didnt know I had to detox until after I had done the seeds). I bought a shroom kit today but that looks as if it may take over a month. I have more seeds coming but dont know if they were truly effective.I did not get any the night I took the seeds for sure which I get at least 4 per night. What do you all suggest? Am I missing anything? I started D3 as well today. Ive read about these slapback headaches. Mine have been coming 24 hrs a day so Im not sure if the cycle was affected or they are slapbacks. I can honestly say that Ive learned more from you all in the last week then I have from 5 neurologist Ive had to deal with over the yrs. Thanks, LJ