[2012 Conference chatter]

A few pics:

My gals- thank you so much for your hard work.

We may have a record CH smile-a-thon

[vegas conference - update]

We will be there tomorrow. If anyone gets there early, give us a holla. Or just look for the Let It Ride Tables!

[Headache on the Hill, 2012]

It was an experience I will never forget. Thank you for giving us the opportunity to be heard.Next year we will have even more people.

Lee

[Update -- 2012 Conference in Vegas]

Mj and I just booked! Looking forward to seeing you all!

[Advocacy project, Wash DC.]

It was an honor to attend. We will make a difference!

[Finally hitched :)]

Happy Day!

Congrats

[New Member about to BUST]

Heres a good tip until you get your mask.

http://www.clusterheadaches.com/O2/index.html

If you donÂ’t have a non-rebreathing mask

The nose canula CAN work, if used this way: Do not put it in your nose. Put it in your mouth, close your lips around it, and inhale.  Open your mouth to exhale, and then close your lips, again, around it to inhale.  Breathe only through your mouth.  Do not inhale any “room air” only the O2.

http://www.clusterheadaches.com/O2/index.html

[New Member about to BUST]

Hi Shades,

You are almost there. The green thing with the dial os your regulator. The adjustment tells you the flow rate and you which is 0-8 lpm (liters per minute), You need a flow rate of 15lpm in order to kick the attack. Also the nose peice (called a Nasal canula) is also inneffective. A non-rebreather mask is a face mask that covers your mouth and nose and has a bag attached to the bottom of the mask. That tank would last me one or two attack before it is empty. Try to find the H- sized tank if possible, Thats good for 8 hours of )2 at 15lpm. I go thru several H tanks a week, but get attacked 12-14 times/day. Hope this helps.

Lee

[Do C.H. go away with age?]

I can remember my first attack around age 5 or 6, but suspect I was getting attacked aven as an infant. My mother said I would be a happy baby, then start screaming and thrashing for no reason that she could see. Was chronic up until age 20 or so, went episodic, and am chronic once again. I was finally properly diagnsed at age 24. No meds have ever worked for me. I turn 52 soon and have seen nothing that suggests they are going away any time soon. Dont mean to bum you out, jsut relating my story. I hope yours stop soon.

[Hipshot the movie star]

Looking good Dan. You  and leeanne are a naturals on film. Thanks for getting the word out. Mj and I are eagerly awaiting the entir segment.

Lee

[Conference Photos]

Thanks for the pics.  That conference was my first time to meet other clusterheads and their supporters and it was amazing to meet all you fine folks. Mj and I had a great time.

Lee