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padre

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Everything posted by padre

  1. Does anyone have any experience with the newly approved FDA Appliance for cluster headaches the "Gammacore?" It looks like a cordless shaver and you apply it to the vagus nerve and it has had significant impact on cluster headaches, in trial. I looked into it and it was not due to be released in America until the third quarter, which is technically now. It looked as if the cost was going to be around $500. I talked to somebody in England with the manufacturer who said that yes it would be around $500 but that would be $500 a month! I mean who could possibly afford that? Anyway I just want to hear from the Cluster Buster folks.
  2. I just heard on NPR radio, today, that there is a new treatment for migraines with a better than 50% success rate for relief of at least a few days. They are treated with antibodies! Anybody "knowed" up on this? I wonder if it was tested on clusters?
  3. padre

    Antibody treatment for migraines

    It is very good to know that clusters were included in the study.
  4. padre

    Antibody treatment for migraines

    https://www.npr.org/sections/health-shots/2017/12/04/567804150/new-drugs-could-prevent-migraine-headaches-for-some-people Here is the NPR article that I heard. Apparently there are two different studies two different manufacturers both dealing with anti bodies.
  5. I'm going to try the vitamin D3 regimen. I read the referenced "paper" on the topic. The best that I can say for this paper is that it demonstrates that, anecdotally, someone had success pursuing it. The unfortunate thing, I feel, is that it's dressed up as a scientific paper, a peer reviewed study. It is none of those things. The author is not an Md. He is not an expert in nutrition or cluster headaches or medicine. All sorts of things such as fighter pilot, chemistry degree (B.S.? asdociates?) experience with oxygen and patent holder and such are trotted out as points to support the author's credence when in fact they have no bearing on the thesis. Conversely, would one want to hear a medical doctors dissertation on fighter planes? To reiterate I believe that it muddles rather than clarifies understanding cluster headaches to dress up an anecdote as a scientific paper.
  6. I just visited with my headache specialist neurologist on October 27th, for the first time since the gamma core became available. I asked her what she had heard about it and her reply is that she had heard nothing about it except for what I had brought to her. Which to me indicates that it's not making any waves whatsoever within the professional circles.

  7. I just visited with my headache specialist neurologist on October 27th, for the first time since the gamma core became available. I asked her what she had heard about it and her reply is that she had heard nothing about it except for what I had brought to her. Which to me indicates that it's not making any waves whatsoever within the professional circles.

  8. I agree that the parasitic predators that depend upon people's ill health to exorbitantly profit are very low. I appreciate all your research on the subject and it definitely makes me pause almost as much as the $500 a month makes me pause. Actually $500 a month just keeps me away from it totally. One notion that I have in the back of my assessment of this is that when I showed the medical journal article to my neurologist that specializes in headaches she told me that the lead researcher of the panel who led the FDA approval was her Mentor back when and that she had complete confidence in him. Never the less, I'm not rushing into this by any means and it does sound like there's a large possibility that these guys are scamming us. Thanks again for your research and for relaying it. I apologize for any typos that might be in this message but it's late I'm tired and I do not have the patience to try to edit these little windows.
  9. Apology accepted. I don't doubt that the gammacore distributor has Serious predatory inclinations. The FDA release must mean something. Short-circuiting three Triple-A batteries to duplicate gammacore's effect sounds untested. Massaging the vagus nerve has had no benefit for me. Thanks again for your interest.
  10. I appreciate all of the information in response to this post. There is still much to be learned about the gammacore. I don't know that the stimulation to the vagus nerve is electrical or if it's Sonic. I'm not an electrical engineer. Neither am I stupid. I do know how to spell. Keep the discussion going. Thanks, again
  11. I appreciate the response to this topic. I'm hoping that if $500 a month can be gotten for this vagus nerve stimulator then somebody else may come up with alternative devices to stimulate the same nerve for similar results. I'm still in shock over the $500 a month cost. I've put myself on the list to be notified when it's actually available here in America but I haven't heard from them to that effect, yet. I will post it when I do.
  12. I appreciate the response to this topic. I'm hoping that if $500 a month can be gotten for this vagus nerve stimulator then somebody else may come up with alternative devices to stimulate the same nerve for similar results. I'm still in shock over the $500 a month cost. I've put myself on the list to be notified when it's actually available here in America but I haven't heard from them to that effect, yet. I will post it when I do.
  13. Does anyone have any experience with the newly approved FDA Appliance for cluster headaches the "Gammacore?" It looks like a cordless shaver and you apply it to the vagus nerve and it has had significant impact on cluster headaches, in trial. I looked into it and it was not due to be released in America until the third quarter, which is technically now. It looked as if the cost was going to be around $500. I talked to somebody in England with the manufacturer who said that yes it would be around $500 but that would be $500 a month! I mean who could possibly afford that? Anyway I just want to hear from the Cluster Buster folks.
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