i am thinking im going to have the same problem. we asked my nurse pratictioner, and old highschool buddy to perscribe o2 for my clusters. ive never been" medically dignosed" but all the research,pain, cluster season periods, i know that i have them. always have been self pay, no insurance. when they started 9ish yrs ago, i was misaerble every night,around 7 to 8 at night for 3 months then gone.
this continued every year until 3 years ago. my dad is on o2 for copd and he loaned me tanks,got a regulator that goes to 15lpm max and non rebreather we ordered
then self medicaded with phcillibian, and after 3 doses went into remission until now. showed up 4weeks ago and are way more intense. since my last cycle, we recently moved away. we are a 1hr and half away from any decent size city for 02. and 3 hrs awayto borrow dads small tanks that i go through one tank in 30 minutes and most of time the headache isnt gone.
so anyways, texted dr, explained my condiiton, sent him links of info. because he was worried about o2 toxiticy, he then wrote me a script for o2, on script it says, for cluster headaches, 15lpm for 30 min intervals, up to 4 times daily, as needed. the damn oxygen place wont honor his script, want more paperwork, diagnosis, etc.
my dr doesnt even understand the ch and never has treated a person. but after reading research, trusting my judgment and my pain im in. he agreed. so now what? any help please
