Hi folks,
This is my first post on here so firstly thank you all for being there. I feel cluster headaches have taught me to identify and focus on things that are truly important in life: family, small moments, being mindful and grateful. This is an incredible community of people and I feel privileged to read your thoughts and perspectives. At times, I'm selfish and make big deal out my own pain, forgetting that everyone (with CH or without) is fighting their own tough battle. Reading through the posts, I discovered people with conditions more severe than mine. To them I say: you demonstrate the meaning of courage in the face of adversity. Salutes to you.
A bit about myself. 40 years, father, husband, math/physics enthusiast. Episodic (once every 2-3 years) sufferer for the last 17 years. Migraine runs on father's side family, but nobody had clusters (as far as I know). My clusters were triggered soon after I arrived in the US for my graduate studies (most likely by abrupt change in clock). Sought neurologist help during previous and current cycle, and currently tapering prednisone + verapamil and rizatriptan (oral, aborts attack in 40 min). Dont know how long these will continue to be effective, but thankful they're doing the job now.
Historically, my cycles last for a 2-3 months and toward the end, I experience long, lot-to-mid intensity (3-5 on the scale) episodes. The pain is manageable (no need to take rizatriptan), but I cant really do any deep work/thinking/reading due to the constant pain. The unusual aspect is that if I dont abort, the pain lasts at that level for dozens of hours. For example, today it lasted 15 hours before I finally fell asleep and when I woke up, it was gone. This is counter to the common description that "episodes last 15 minutes to 3 hours". Has anyone else experienced such super long low-intensity episodes?
Also something curious I discovered. Acidic foods (even oranges and pure tomato soup) worsen my headaches.