Spud

Hello, Quick follow up. I've got a new Primary Care Physician and have gotten the results of my OH 25 D2 test. 14 ng/ml which is deficient. Been waiting on the protocol until I had the baseline numbers. I will be starting the D2 (plus cofactors) today. The reason that I had the luxury of waiting for the blood test results instead of just starting is because the busting method was an incredible success! No headaches after the 2nd installment although I went ahead with the 3rd installment to complete the regimen. I have been CH free since 12/10 with very slight twinges that I wouldn't even call shadows. After bust 1 there was definitely a shift in symptoms for the best although a ton of shadows for several days leading up to bust 2. Ginger tea was my friend. After the 2nd bust all was well except for a nice tension headache that was easily attacked with ginger tea and Excedrin. FYI I was about 6 weeks into my episode which are typically 12+ weeks long. Thanks for all the help CH Father, Jonathan and Batch! Your tips in this blog and previous ones have been very helpful and you have made my quality of life so much better. And thank you Mr. Bob Wald for having the courage to advocate for us!! I owe you big time. Peace and love, John

Quick update. Getting no response from my doctor after multiple phone calls requesting O2. NO RESPONSE?!?! So today I have found a new doctor recommended by a nurse practitioner friend who I respect greatly. We shall see. With regards to busting, round 1 went well with a decrease in overall intensity but still many shadows. Still multiple CH during the night although only 1 last night (hurray) but all have been aborted within about 10 minutes with deep breathing and slight hyperventilation. I found that going the full bore method for hyperventilation with aggressive exhalation would make things much worse before they got better. I have found a middle ground that still gets me tingling after about 5-10 breaths but doesn't jostle the beast as much. Whatever works. Bottom line, things are trending better I believe. Next bust tomorrow. With regards to D3, I have had a nice long conversation with Batch and have things on order. Want to isolate the variables, so one step at a time. Quick question about caffeine as Jon had mentioned it above. I had been told (from my mom some 30 years ago) that I should stay away from caffeine as much as possible because of rebound headaches. This is the first episode I have not done that and still have a cup in the morning. Seems to keep be CH free until later in the day. After Jon's comment I wonder if it shouldn't be taken more regularly. My apologies if this has been covered heavily in the forums and I'm just too much of a slacker to have seen it. Thanks for help guys. I'll keep you updated. Spud

Hey Jonathan. Just ordered a 0 to 25 lpm reg and the O2 kit from Clusterheadaches.com. Waiting for the doc to call back for an O2 prescription. If I had a dime for every time I heard that line. I am the poster child of procrastination even to my own demise. LOL Thanks for the advice. Once I get my O2 rig going I will definitely follow up to let you all know. Spud

Thanks CHfather. The Cyclobenzaprine was definitely a reach . I have tried many of the conventional drugs over the years and triptans are effective at aborting a CH but I need to pick and chose when to use it as I am not taking that stuff everyday for health and financial reasons. I have yet to try O2. As you said given the frequency of my episodes I just haven't gotten to it. My number one most effective method for aborting a CH (for daytime events) has been deep breathing and consciously relaxing my next muscles (that why I hypothesized about the muscle relaxant). If I can get away from everything when I first get the signs I can usually abort within 10 minutes (sometimes not). This has been a life changer for me. My issue is the arrival of the beast at night. By the time it wakes me the party has already started and it is a real challenge to slow it down at that point. Absolutely no perception of crankiness on your response. I very much appreciated it. I have read through the basic non busting busting info in the past but need to re-read it. I will look more closely into the D3 regiment. Just thinking of what I have available with regards to busting. Forgot to mention, I also increase my water consumption and take turmeric 3 times a day. Started this about 10 years ago and it appears that it lessens the number and severity a bit. Could be fooling myself but sometimes that what it takes.

Thanks CHfather. The Cyclobenzaprine was definitely a reach . I have tried many of the conventional drugs over the years and triptans are effective at aborting a CH but I need to pick and chose when to use it as I am not taking that stuff everyday for health and financial reasons. I have yet to try O2. As you said given the frequency of my episodes I just haven't gotten to it. My number one most effective method for aborting a CH (for daytime events) has been deep breathing and consciously relaxing my next muscles (that why I hypothesized about the muscle relaxant). If I can get away from everything when I first get the signs I can usually abort within 10 minutes (sometimes not). This has been a life changer for me. My issue is the arrival of the beast at night. By the time it wakes me the party has already started and it is a real challenge to slow it down at that point. Absolutely no perception of crankiness on your response. I very much appreciated it. I have read through the basic non busting busting info in the past but need to re-read it. I will look more closely into the D3 regiment. Just thinking of what I have available with regards to busting. Thanks!

Hi all. I've been an episodic clusterhead for about 33 years. Every 2 to 3 years for about 12 weeks is typical. I'm trying to find out about prescriptions that "Play Well Together" with the psilocybin method. I am currently taking Cyclobenzaprine (1st time and the jury is still after after 30 days) and am wondering if anyone knows if the two get along. Thanks for listening. I am so happy to find folks that have some idea of what I am going through.