Hi all! I am a 27 year old female from Plymouth, MA. I am so excited to attend the CH conference in Sept! So I was just jumping around reading some posts. This triggered a question ... I have been getting CH since age 12. I was misdiagnosed until age 22. I had always had seasonal attacks every fall and spring, pretty clear in the winter and summer. I always knew what month and what time they were coming. Well the past five years with my specialist just seem to be pumping 80mg Prednisone tapers into me everytime a cycle begins. I use Sumatriptan injects for emergency (at work, in public) cases and O2 when at home. But to "break my cycle" he had me on Prednisone. It's been about 2 years with slight breaks off prednisone. I am scared to death of the side effects and what it does to the body. I tried the d3 Reg with no luck, verapamil fast release at 240mg no luck and he told me to get off and go on prednisone, mushrooms worked so well for me years ago and kept me free for one year, but these past two years are just non stop. I feel like I'm losing me mind, I've lost jobs, had to stop school. Any insight on if prednisone is making it worse?