bobvalli

Hi all Just a follow-up Last week I lived the literal week from hell. I have to go back 12 years to find a time when my headaches were as bad as they were this week. Took forever for the main pain to go away and the ghost hung on for hours. The only saving grace was the advice on the o2 therapy. All I can say is OMG. I'm still in shock over how quickly and effectively it works. I used it 4x over the weekend . Watched the clock when I started on the mask. Swear....3 minutes and the relief started. Stayed on for the perfunctory 10 - 15 minutes and suddenly life was beautiful. I actually scheduled an appointment with my doctor for tomorrow to discuss what could only be called crisis management, but with the o2, the crisis seems to be over. For anyone interested, $250 out the door to lease an full 80 cylinder for a year (with tank deposit ) , the regulator from Harbor Freight, and the non rebreather from Amazon. $18 for refills. Best money I ever spent. BTW I have a cutting torch setup, so the tank definitely won't go to waste even once this cycle is done. I just want to say thanks to everyone who offered their support and advice. I'll continue to keep all of you in my prayers.

Thanks very much DD Try to have a great day.

Hi all I just want to clarify before I drop some Dinero today. Welding Oxygen is safe to use for CH therapy? We're talking about the oxygen like from an oxy acetylene torch setup? Correct? I'm looking at Aero All Gas as a supplier. When I broached this idea with the wife, she kinda freaked, so I told her I would ask the pros. Feedback most appreciated Here's to hoping for a good day for us all Bob

Hi amon, CHfather Thanks for the replies While my PCP is a GP, he still did wonders as far as making a proper diagnosis. I'll have to mention about the non ER formulation of the Verapamil. I was also thinking about asking for Sumatriptan oral. I'll mention the O2, but I'm not sure what my new HSA will cover. The wife has been busy the last couple days getting the stuff together for the D3 regime. I started taking the D3, Omega 3 and Magnesium today. I started getting a hit around 1:45 and it felt like it was going to be a bad one. Got into my "safe space" and before I knew it....bam...2:05.....gone, so I think one of those things might have already had an effect. I'm going to do the 2 week hyper dosing plan for the D3 to get my serum levels up as quickly as possible. Another thing I'm going to try to keep an eye on is trigger foods. We went through the trigger list today and checked foods we bought recently looking for nitrates, nitrides, and preservatives . Apparently without knowing beforehand we did pretty good. All these things combined will hopefully bring a quick conclusion (or at least a good reduction ) to this cycle. Thanks again Bob

Hi First post from a new user here. I've had episodic CH since I was about 15 and am pushing 59 now. As I've gotten older, my cycles have gotten shorter, and the PF period between them longer. This last time I was PF for 4 years. but.....they're back starting last week. I take Verapamil 180mg ER twice a day and receive opioid pain relievers during the active periods. Now considering the huge amount of information that's become available on the Internet, I happened upon this site. Thanks to all of you who share your experiences and knowledge. I pray for all of you. I've been reading about busting, D3, steroids, O2 therapy, the Imitrex type meds, and supplements. After a lot of reading, I decided to try Melatonin. Problem is that within an hour of taking it, I got a headache. This headache came on only a couple hours after getting rid of a previous headache. For me, normally once a headache breaks, I'm good for 6 - 8 hours before the next attack, but when I took the Melatonin, within an hour I had another headache. I tried it 2x nights and both nights same thing. Anyone else experience this? I think Magnesium is going to be my next test. Thanks for reading a somewhat dyslexic post. I'm writing this first thing in the morning, and I still have some cobwebs from an attack that woke me up.