Hi, I'm not a sufferer of these horrific things rather a wife to a cluster head and I have a couple of questions.
My husband started with these when he was 40, he's now 53. He was in remission since 2013 but they are now back.
I can't believe with all the research I've done that I was not aware of RED WINE being a trigger so I blame myself fully for this reoccurrence. It was 12/9/16, my companies Christmas party, and we decided that we would drink this wonderful red wine, can't even remember the stinking name now but I hate it! Anyway, the next morning while driving home, it happened, I heard his voice change and I looked over and there he was, the devil in all his glory! I couldn't even believe it!!! My husband was able to work thru that one while driving, no O2, no shot, nothing, I don't know how he did it but he did. For the next two weeks there was nothing, he was convinced it was a fluke and then Christmas came and the cookies and the sweets and the chocolate, and then he took a vacation between Christmas and New Years. Were not sure which one of them pushed him over the edge but it did and he's fully engulfed now!
Seen his neuro on 1/6/17; gave him back his RX for O2, more imitrex and of course prednisone. Unfortunately we cannot break this cluster.
He was doing great while on the steroids but as they started to decrease, his headaches increased.
I'm guessing that's my question, have any of you tried prolonged usage of steroids? If so, did this help you? Did you suffer side effects?
I just don't know what to do for him and I feel as if I was the cause of this bout, I cannot believe I didn't know about the red wine and did this to him, I just feel terrible and am looking for anything I can do to help him!
ps - not really a newbie but cannot remember our signon from years ago!!
Thanks!