You need to attend a Clusterbusters conference. Watch this sight and you will learn all the details. They are held in September of each year. It was a wonderful experience to be in a large room with either CH sufferers or their families. It is a very lonely disorder and people who haven't experienced can't begin to understand it.
Being from Bloomington I'm assuming you are a huge IU fan. I grew up in New Albany and all my family is still there. There can't be bigger IU fans than my family members.
Thanks for the tip when posting my question. Take care of yourself. We all need each other.