jilltx

I haven’t but I’ll def try it next time. Lol, I’m no good with push ups but I’ll try that next time too! Thanks for the suggestion

I started getting clusters when I was 16, just turned 39. I’ve just gotten through another 3 week cluster episode. I used to get them once a year lasting 3-4 weeks with 3-6 attacks a day. As I’ve gotten older it’s now every 2 years. Like clockwork. Early on, large doses of caffeine would sometimes abort a headache. I’ve tried all sorts of treatments, dangerous drugs, more recently verapamil and a corticosteroid. What I’ve found is that the headaches are just going to come. The verapamil will help for about a week, but then my body’s back on the clock to make sure I get a solid 3 weeks even with the interruption. Tactics I’ve learned over the years: breathing hot steam at the onset can give some relief in the very early stages; playing tricks with time - I’ll take whatever drug I have available, usually zomig nasal spray, and tell myself it will start to help in 5 minutes (which it doesn’t) just any kind of trick in my mind to get me through the time; lots of pacing, rocking on hands and knees; this past attack I decided to try pot. I’ve never done it before but honestly I think it was the most effective tool I’ve used to get through the pain. There is nothing that helps during the height of the pain, but it relaxed my body and I was actually able to lay down for the majority of a headache, which is a miracle for me. It would also help me go to sleep. The terrible anxiety, fear and depression that come along with the cycles is all part of it for me. Being able to lay down and go to sleep despite knowing I’ll wake up in panic at 1:00 A.M. is huge. Sorry, this is my first time to post and this is long. Much love to you guys out there going through this. It gives a person a special perspective on suffering for sure.