Hello all!
I'm 28 a mother of 2 and have been getting CH for 13 years now. I use to be able to have 8 months being pain free. Between cycles now I'm down to 1 maybe 2 months if I'm lucky! I take 240mg a day of verapamil, I use sumatriptan injections if I'm at work when I get a headache but insurance won't cover them anymore so I only use what I have left sparingly (and they make my anxious). All my usually treatments seem to becoming less and less effective and my CH are more and more frequent. I do also use oxygen when I can but the tank they give you isn't portable so it's only an option at home.
I've been recently researching other treatments that could help and would love everyone input or findings. I'm looking into the vitamin D3 regieme as well as doing a nerve block? Is there anything else I'm missing? Any success stories?
Like many of you know, it's hard to live day to day being in so much pain. I'm worried about how I'm going to be a mom, work 40 hours a week, and maintain relationships. I appreciate any advice you all might have!