greeneyes87

I did finally see that my D level was at 28 ng/mL. I still have until next Monday until I see the dr. again. After having a pretty awful last week Friday was better-first day back to work after vacation with no major attacks. Was hit Saturday afternoon and then again Sunday morning. The past two days I have not had any attacks but have had the constant pressure and eye pain on my left side with ice pick pains sporadically. Since stopping the carbmazepine I am strictly on vitamins... here is my list of what I am currently taking... 1200 mg Calcium-i have osteopenia, 400 mg magnesium, 400 mg B2(Riboflavin), 1500 mg Tumeric, 4000 mg D3 (i started at 2000 as the doctor recommended and then upped it-thinking I was up again to see if I can get rid of the dull pressure and ache (shadows?), OmegaPlex (I have been taking from Advocare for a while 2 at lunch and 2 at dinner-don't know the exact dose). I also have been taking melatonin at night 10 mg- but then upped to 20 mg because I was still waking up alot at night and not sleeping well. The only thing I have taken is Flexiril becuase of my neck and shoulder pain but just maybe one a day and not every day.

Blood results came back and she said it was a little low but did not tell me what it was at. She instructed me to only take 2000 mg a day.

Also chfather I am sure this info is probably somewhere but what am normal standards for D level and then what does it need to be to counteract the CH?

I did seem to do better when I was eating cleaner but that also seems to be before these really ramped up. I went to my obgyn today and got my script renewed on the bc. She told me to start 400 mg of magnesium and 400 mg of riboflavin. She also drew blood to check my vitamin d levels. Last night I had had two attacks. The second was ugly and lasted about an hour. It was later at night and then I couldn't really sleep. Do you drink the 5 hr energy drinks even when it's late or in the middle of the night? Most of mine seem to hit during the day or evening.

I'm not supposed to see my dr again until the 28th although I think I may have to ask them to move it up. I was have had multiple attacks the past couple days. Yesterday's was in the middle of Walmart. I got me some 5 hr energy shot while I was there so if I get another attack today I am going to try it. Question did your dr draw your blood and just run any type of regular panels? I have had no lab work done thus far and I don't know if that something the neurologist would do or if this is odd and should have been done already. I did look also for the things in the regimen I just am reluctant to try it until I see the dr:/ the carbamazepine has done nothing for me though even after upping the dose like he said so I would rather just not take it anymore...

I am going to go get some energy shots today and try it next time. Spiny this is just for my birth control. I was already having the issues before stopping it. Plus I was reading that with the low dose she had me on it wasn't as affective with the medication the dr gave me anyways. I am going to call over today and get the nuerologists number today though since I still haven't heard from their office. Would be nice to see them before my OB but that obviously isn't going to happen:/

My attack today came with no warning. I went out for lunch and got hit while driving. Quickly pulled into a parking lot and sat there for 30 min:( It just made me feel so helpless and also scared. Scared to go anywhere and do anything:(

I had no idea that is what everyone was calling shadows. I read a little more after reading this and realized you may be right about that. It's not so much painful as just a really annoying pressure in my temple that rarely goes away. Some days it will but then it comes back and I am on edge all the time when I start to feel intensified pressure or anything like that that I am about to get hit with something bad. I had another attack last night but it didn't last as long as was not quite as painful thank goodness. I have considered the D3. I don't really do energy drinks and don't keep much caffeine in my house honestly. But I may have to revisit this if it will help. I do drink coffee at work and I drink tea... it doesn't seem to help though.

I also did not think that CHfather and also as I mentioned before I don't have attacks from touching my face or tooth pain or anything like that. I do know from talking to the doctors office today that the nuerologist has received my referral just has not had time to call me yet. I hope that it does not take a long time to get in a see him. I agree with you. I would like for someone to have a better idea as to how to diagnose and treat me (if that's possible). Last night I was really wishing I had oxygen because I got so worked up that I couldn't breathe.

I was on prednisone 4 mg dose pk taper for 6 days and Nortriptyline 10 mg. I wasn't sure which one was causing the insomnia so I have been taken off of that and started Carbamazepine 200 mg on the 3rd. I don't think that CH has been ruled out but he is just going through everything it could be and ruling it out. He has now mentioned Trigeminal Nueralgia but I am confused because I don't have any of those triggers... I did ask him about indomethacin since I had read several things it is used to treat but he did not see that as something that would help me at this point. He is trying to get me in to see a nuero that specializes in headaches before he sees me again in a month. He has also given me a script for Butal-acet-caff to try and combat any severe long lasting ones. I'm actually sleeping now and was feeling somewhat better until yesterday. I had a dull headache most of the day but last night was awful. I was screaming and crying and couldn't stay still. Not neccesarily the type of pain you had described MoxieGirl but lasted about an hour. My husband wanted to take me to the ER but I wouldn't let him. I honestly didn't even want him beside me because I didn't want anyone to see me like that, although it was nice to be comforted. Afterwards I was completely drained and my head still hurt-I ended up going to bed about 8:30. Woke up and still have a headache On another note I ran out of my birth control pills last Thursday. For whatever reason the pharmacy hasn't gotten my refill done and I decided to just let it go until I see my OBGYN on the 15th to see if the hormone change helps at all.

Well I started the meds on Friday...that was not a good day. I was much better on Saturday which I typically am for whatever reason but neither night did I get really any sleep. Sunday I had some problems but wasn't too bad...I did sleep better but I chalk that up to the flexeril I took before bed because my back was killing me. Yesterday however was not a good day. Woke up with the dull pain and was feeling kinda lightheaded in the morning. Around 1:30 I was starting to feel more pressure in my head. By 2:30 my eye was burning and watering, my jaw hurt, my cheek felt numb, I was having a hot flash, and my head was throbbing. Was having shooting pains and burning in the back of my head as well. I finally ended up taking out my contacts cuz my eye hurt so bad. This lasted about 2 hours before I started to feel some relief. Around 6 or so I started having sharp pains and ear pain with throbbing in my temple and my left eye even though I was in the dark seemed like I was seeing shadows and was very blurry. This morning my neck felt really sore and I still had a dull ache in my temple. I had a milder attack this morning with alot of the same symptoms but this time the pain shot down my neck. This afternoon the pressure has intensified some and I have stabbing feeling in my eyes and back of head. My cheek has again gone numb and my eye is blurry. I don't feel like the steroids or the nortriptyline are helping although I don't know how long it typically takes to notice a difference... just feeling frustrated:/

Thanks for the response. I have had some pain free days and sometimes during the day they will go away but on my bad days the dull ache usually sticks around and then I get painful spikes numerous times a day. I will look into the other things you mentioned as well. I have not yet been able to get into the nuerologist but they are working on the referral. Just would be nice to be able to figure out what is going on because my quality of life has gone way down since this started. Looking back I think this actually started before I thought it did. I got sick in May with a supposed sinus infection/viral and had bad headaches with that. I got better then got worse again. I will update once I have been on the medicine for a few days. Thanks!

My story starts on 6/9...I get an awful headache and decide to go home for the day. The next day I was scheduled for a facial and massage and I thought great-maybe it will make me feel better. Well it didn't and I left feeling terrible. My headache continues pretty much non-stop... I finally break down and go to the chiropractor across the street from where I work on 6/15 because I am also very tight in the muscles in my neck and shoulder. I am told I am stage two degeneration in my neck and need to continue to come and also start rehab to try and make it better. By 6/20 my headache has still not subsided and I have a horrible attack while out driving on my lunch break so I drive straight to the ER. No tests ran was diagnosed with a tension headache and given some cocktail and sent home. Alas the next day headache comes back. I finally get in to see the PA. 6/22 start trigger point injections and go through 3 rounds in the course of the next week but it doesn't help. The 800 mg Ibprofen and mobic don't help...the flexeril helps some with my muscles when going to bed... Still having headaches and get a really bad one on the day of my MRI 7/21. It came back this week and is negative. While that is a relief I still want answers... I saw a new PA yesterday and after reviewing my file and talking with me he thinks I have cluster headaches. I was told to keep a log for a month and come back to see him. In the meantime, I have a started a 7 day steroid today and will start Nortriptyline tonight and see if any of that helps. I have had the pressure in my head and eye all morning and have had two episodes of intense pain that last maybe 5 minutes. Eye feels enlarged and waters and nose drips. The lady I work with drives me nuts. She does not understand at all the hell I have been going through for almost 2 months. I have had migraines in the past and also a history of headaches but not like this. Nothing helps... Glad to have found this site if this is what it turns out to be. Always good to have support from someone that understands...Also sometimes when I get those attacks I feel like something is crawling inside my head and I feel like I am going crazy:/ Can anyone share with me how they felt when theirs first started out and if it sounds anything like what I am going through? Was it always severe or gotten progressively worse since have noticed many say they have gone from episodic to chronic.