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Primrose

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About Primrose

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  1. Excuse the duplicate post. I am having a little trouble getting my reply to Batch to load. In the meantime, thanks to Spiny and CHFather for all of your helpful input. Reply to Batch is: Batch. I can't thank you enough for taking the time to send this lengthy and detailed message. I have read the information several times and am trying to sort and process it all, at which time I am sure I will have some questions. I am wondering what you meant by allergic reaction. I have been taking 5000 IU Vitamin D3 for many years. I also take Magnesium and Glucosamine. Drinking an adequate
  2. Thank you, Dallas Danny. I suspect you are absolutely right that I was not using the equipment effectively. I have not had much guidance from my neurologist, though maybe the direct delivery of oxygen is as different as each person using it. I imagine we have to figure that out for ourselves. I have sent the oxygen tanks back as they were quite costly. Do most people own their own tank or go through a supply company? I will talk to my neurologist to get back on track and follow your directions for use. Thank you again.
  3. Thank you, Dallas Danny. I suspect you are absolutely right that I was not using the equipment effectively. I have not had much guidance from my neurologist, though maybe the direct delivery of oxygen is as different as each person using it. I imagine we have to figure that out for ourselves. I have sent the oxygen tanks back as they were quite costly. Do most people own their own tank or go through a supply company? I will talk to my neurologist to get back on track and follow your directions for use. Thank you again.
  4. Filacibin, thank you for your quick response. I have seen many YouTube videos about clusters - I could have made those. I take your suggestion as a sincere and kind gesture so I hope you will not find me rude for saying that I have been conclusively diagnosed and am not seeking input on that. In fact, when well meaning people try to second guess me or my drs it causes me a great deal of anxiety. If anyone else chooses to reply to my request for help may I respectfully ask that you do not try to rediagnose me? Thank you.
  5. I was diagnosed with chronic cluster headaches four years ago. I also have episodic migraine with aura and they are very different than CH. I have tried most of the standard preventive meds with no success. I have not tried Topamax because I weigh 95 lbs and my first neurologist said the weight loss would be dangerous. My bp is typically 80/50 so I was unable to take high enough doses of Propranalol to be effective. Verapamil caused angioedema. I have also tried Amatriptaline, Indomethacin, prednisone and cyclobenzaprine. Sumatriptan is always effective in aborting. I split 100 mg and limit m
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