lynn327

I have been taking Emigality for 6 month. I know this sounds stupid but I sneezed 10 real hard sneezes that broughtvon the cluster headaches. The Emigality stopped the sneezes completly, but I still get the headaches. What I want to know is can you take a double dose of Emigality every month? I'm thinking that if a singel dose takes some of the symtoms away then would a double take some more away

I've been taking Verapamil SR 120 mg once daily for 4 weeks and hasn't helped at all. What dosage do you all take of this drug? I have an app today with the Neurologist. Should I ask him to up the dosage? Oxygen still making me light headed and dizzy and don't do anything for the headache.

So far The oxygen hasn't done anything.

Why is it when I stay on the oxygen for 15 minutes at 15 lpn do I feel shaky and dizzy and oh sooo cold?

They brought the concentrator to fill the tanks, because as often as he have to use it, they would have to come out every other day. I'm so tired of fighting with them to get what I need. I thought they would bring bigger tanks, and then they would bring more as I use it. But they won't do that. The bigger tank has a different regulator on it.

The 3 small tanks are 30"s tall and the larger one is 28"s tall but a lot bigger around. I also have another question. After I sneeze and Bam a hit, within seconds I get relief ( I call it a break) that last 10 to 15 minutes. Then bam it hits again. Any body experience this?

Since I don't get the nausea before the sneeze, I have no idea when I'm going to sneeze and get cluster. So my question is, will the oxygen work after the headache already started?

Yes I did increase the dosage of the D3 to 50,000 daily. Things are changing some as far as the Charlie horses and the nausea.

I also forgot to mention, the doctor gave Prometh 25mg for my nausea. Now instead of being nauseous for an hour or so before the sneeze, it's only seconds. Two improvements : The Magnesium took away the Charlie horses in my neck which is such a relief. And now the nausea is down to seconds instead of hours. but now I sneeze without warning and I get hit hard. I mentioned before, the sneeze is not just a normal sneeze, it sounds like I just blew my head off. It's so hard it scares the dog and she starts barking. I do sneeze normal some times, but I don't get a headache from a normal sneeze. Just weird!

In answer to CH Father. They brought 3 med size tanks, and 1 larger tank. Then they brought a concentrator along to fill the tanks when those get empty. So I don't have to go anywhere to fill them . I can do it at home. The larger tank is for an emergency. I have to keep it fill at all times in case we lose electric, and wouldn't be able to refill. I can also take it along in the car.

I've been taking Benadryl for the last 10 days. Nothing changed. I'm taking 15,000 D3 daily along with the other vitamins, for about 10 days now. I usually wake up with nausea & sneeze as soon as I open my eyes, then the headache. Around 12:00 another bout of nausea and then the sneeze and headache, Around 4:00 another then 7:00 and 9 another. Usually 5 daily and worse in the evening. The last 2 days I've only had 3 so maybe I'm making a turn around, but I have good days and bad before. I've only ever seen one other person that has these same symptoms. When I looked online at nauseous sneeze forum there was a girl on there that ask if any of those people had severe migraines with the nauseous sneeze. Must be quite rare. They say to use the oxygen as soon as you feel like you are going to have a headache. I'm not sure if that means when I get nauseous, but that can be an hour before the sneeze, unless I use the pepper to hurry it along, or do I wait till I sneeze and then use it?

I've been taking Benadryl for about 3 weeks now, but it don't seem to be helping the stomach. The doctor said you can't treat the stomach by itself because all of it is part of the migraine. So if I ca get rid of the headaches I will no longer be nauseous. Last 2 days have been better. Only 3 sneezes and headaches. Hopefully that's a good sign, but I've had some good days before. When this all started I had a 10 day remission period and then it started all over again. The sneezes and headache seem to be worse after 4 in the afternoon until bedtime. Do I stay on 15,000 D3 all the time or can I use less later?

Ok The oxygen supplier that brought us the concentrator came and picked it up and brought us tanks. 3 small tanks and one large emergency tank. When the small tanks get empty which is app 3 headaches each you hook it up to a machine to refill them. He called it a concentrator that takes the oxygen out of the room and then transfers it to the small tanks. Does this sound like what I need? He also told us that the highest this supplier as for flow rates goes is 15. I'm confused.The doctors script said 15/25 for 15 minutes. I've been on the Benadryl for 2 weeks. I'm taking 15,000 D3 daily for appr 8 days now. Headaches are random at 5 a day. No change yet Since the mag I didn't have no more neck cramps.

Ok The oxygen supplier that brought us the concentrator came and picked it up and brought us tanks. 3 small tanks and one large emergency tank. When the small tanks get empty which is app 3 headaches each you hook it up to a machine to refill them. He called it a concentrator that takes the oxygen out of the room and then transfers it to the small tanks. Does this sound like what I need? He also told us that the highest this supplier as for flow rates goes is 15. I'm confused.The doctors script said 15/25 for 15 minutes. Batch you are absolutely right, no more neck cramps. That problem solved. Now if I could just get rid of the nausea that causes the sneeze, then I would be good to go. I've tried so many different kinds of pills for nausea and nothing seems to work. Now that I've finally found a way to make myself sneeze (pepper) I can stop the nausea. Then the head is pounding. Doctor has me on 1250 mg of Depakote daily. Anyone else taking that for their headaches? He also gave me a nasal spray called Dihydroergotamine Mesylate. So far it is doing nothing but it will take time to see if it works. He says to call him in 2 weeks if it doesn't change for the better, and he will put me on Verapamil. One thing nice about this doctor,he is open to suggestions, so if I read something on here that has helped someone else he is willing try it.

Ok The oxygen supplier that brought us the concentrator came and picked it up and brought us tanks. 3 small tanks and one large emergency tank. When the small tanks get empty which is app 3 headaches each you hook it up to a machine to refill them. He called it a concentrator that takes the oxygen out of the room and then transfers it to the small tanks. Does this sound like what I need? He also told us that the highest this supplier as for flow rates goes is 15. I'm confused.The doctors script said 15/25 for 15 minutes.

I am as dumbfounded as you. I can't find anything like it online to connect the symptoms I have. Lots of people have the nauseous sneeze, but not the headaches . Then there are the people that get migraines from sneezing, But to connect all of them. The neurologist didn't seem to think that it's unusual, and called it cluster head aches.I have an app in 2 weeks to see him. Some days are better then others and I only have 3 sneezes and then others are worse with 6 sneezes. When the nausea starts, I never know how long until I sneeze. Sometimes I vomit, but usually not. When I sneeze the nausea goes away instantly and the headache starts. I discovered a way to bring on the sneeze by pinching my nose, just so I don't feel sick to my stomach anymore, But the pain isn't any better then the nausea. If I take a Percocet without 15 to twenty minutes I'm feeling much better. But then it all starts over again. I'm so tired of feeling sick all the time. With the opioid thing going on right now, I don't know how long I can stay on the Percocet. Ok I've tried this oxygen for two days and it hasn't helped my cluster headache. It says to start the oxygen when you feel a headache coming on and not to wait till its full blown. The problem is I have no warning except the nausea and the sneeze. Once the I sneeze I have a full blown headache. I feel really light headed after using the oxygen. Is this normal? Is it because the flow rate isn't high enough ?

This discussion board says to use the oxygen as soon as you feel the headache coming on. The only warning I have is the nausea that can last 1 hour before the sneeze. Since this is all connected should I start the oxygen when I get nauseous to see if it will prevent the sneeze and the hit? Another thing most people with cluster headaches say that Percocet doesn't help. That's my only relief.

I wanted to mention something else. After the sneeze happens, BAM the hit, BUT I have 2 different types of headaches. Sometimes I have aura, that I can't see anything but bright lights. Then the other times Bam it hits and I don't have aura. The one without aura hits, and about 3 minutes later it gives me a break. The headache doesn't go away completely, but it lets up so that I can function. Then in 10 minutes or so it hits hard again. The one without aura, I can't think and have trouble finding words. I don't know I'm so confused with the whole thing. You say that Cluster headaches are on both sides and mine are at the temples and other times it's the whole head that hurts. I do have the weepy eye and runny nose. I'm really starting to question this Neurologist. My GP said he would write out the script for the oxygen, if need be, since the neurologist didn't know what he is doing, but will the ins except 2 different doctors giving 2 different scripts?

I tried to tell the man that delivered it that's not right , but he didn't seem to know anything about it, and acted like I didn't know what I was talking about. Yes this is very frustrating. I don't think the Neurologist that I went to, ever prescribed oxygen before. He did say it would help, but he didn't know how to write out the script for it. The medical eqipt co we went through had to go back and fourth 3 times before they got this, and now it's not right. I tried it and it doesn't do anything for the headache, except make me light headed.

So today they delivered an oxygen concentrator.6-10 lpm for 15 minutes using a non- rebreather mask. Is this what I need ? I am new to this and have no idea what I should be using. Please advise.

I had a Cat scan, MRI and MRA. Laying down makes my head hurt worse . I am agitated . They come on randomly. If I wake up in the middle of the night I sneeze and then the headache. This isn't a normal sneeze. It is different then my normal sneeze . It is a very forceful sneeze.I don't sleep much. The neurologist said the nausea, sneeze and headache are all connected , and seems to think it's clusters. I have a weepy eye, and runny nose. He said you can't treat one because it's all one thing. He has another patient with the sneeze.

I had a Cat scan, MRI and MRA. Laying down makes my head hurt worse . I am agitated . They come on randomly. If I wake up in the middle of the night I sneeze and then the headache. This isn't a normal sneeze. It is different then my normal sneeze . It is a very forceful sneeze.I don't sleep much. The neurologist said the nausea, sneeze and headache are all connected , and seems to think it's clusters. I have a weepy eye, and runny nose. He said you can't treat one because it's all one thing. He has another patient with the sneeze. Let me start from the beginning. My name is Cody, I'm going by the name lynn, long story. I'm 27 year old single male. I lost my job, car and I feel like my life is over. I moved in with my grandmother cause I couldn't afford my app. The nausea, sneeze, and headaches started in Feb 2016. It went on for 2 month. I started taking melatonin and then stopped for ten days. What a relief, but Then they came back with a vengeance. In that 10 days I didn't have the nausea, sneezing or the headaches. So we knew they were all connected. I tried 2 different Neurologist and no one would listen when I told them what was happening. They would not connect all 3 things. I went online and saw there is something like a nauseous sneeze and everyone on that site blamed it on acid reflux. So I went to a Gastroenterologist. Nothing helped. Then I tried another approach. Allergist and ear nose and throat doctor to no avail. Finally I tried another Neurologist, and right away he said Cluster headaches. He also said don't try treating one of the symptoms, cause it is all connected. Finally someone knew what I was going through. He said he wants me on Oxygen therapy, but he didn't even know how to prescribe it. I am having a hard time getting him to write the right script for it. It is now going back and for the with the medical supply co and the doctor trying to get it right. He put me on Divalproex, Rizatriptan, and Ondansetron. It's been 3 weeks and nothing is helping. I want my life back and not in al this pain 5 times a day EVERYDAY Things that I forgot to mention in the above message. I'm new here so please forgive me . I failed to mention that when this cycle starts with the nausea and sneeze Bam I get hit with the headache immediately. Another thing I failed to mention is there are times when I sneeze I get a Charlie horse in the neck, that pulls my head over to my shoulder. the only way to relieve the cramp is to have someone pull on my head. When the cramp releases it sends my whole body into 5 or 6 spasm that go from my shoulders to my lower back. It's very painful. I've been to orthopedic doctors and I have herniated discs in the upper part of the spine, but I've had them long before the headaches started. I also have a hard knot in my shoulder that hurts even to the touch. After hearing all this the last neurologist still claims it is cluster headaches and says cluster headache can be more then one sided. I just don't know

I had a Cat scan, MRI and MRA. Laying down makes my head hurt worse . I am agitated . They come on randomly. If I wake up in the middle of the night I sneeze and then the headache. This isn't a normal sneeze. It is different then my normal sneeze . It is a very forceful sneeze.I don't sleep much. The neurologist said the nausea, sneeze and headache are all connected , and seems to think it's clusters. I have a weepy eye, and runny nose. He said you can't treat one because it's all one thing. He has another patient with the sneeze.

I am taking 20,00 vitamin D3, 1000 magnesium, vitamin A, 200 mg calcium, 150 Boron. I didn't start the fish oil yet I've been to 3 different Neurologist and final got diagnosed with cluster headaches. Some of my symptoms are cluster and some are not. I get nauseous, within 30 minutes to an hour I sneeze, then the attack. Maybe 2 to 3 hours later the nausea starts again and then the sneeze. This happens all day long. As soon as the nausea hits I know I'm going to sneeze and them the headache. When the headache hits it is severe and then it lets up for 15 minutes, and then it is severe again. I take Percocet for pain and that's the only thing that helps. We are working on getting oxygen therapy, but it's a slow process. I've tried all kinds of meds from different neurologists and nothing worked. I'm really curious if anyone has the nausea, sneeze and cluster thing. The other thing is that don't sound like cluster is the headache is on both sides on the temples. Going to try the vitamin d regimen and waiting on the oxygen.

I am taking 20,00 vitamin D3, 1000 magnesium, vitamin A, 200 mg calcium, 150 Boron. I didn't start the fish oil yet