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Angela

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  1. Hi everyone. I'm Angela, 29, from a long country known as Chile. I was diagnosed with clusters headaches 5 years ago. Until this year (2017/2018), I had episodic clusters, from August to December every year. So I knew when to be ready. Well, as ready as a person can be for this kind of thing. I was taking Topamax (150mg per day), prednisone and naratriptan. This year (2017/2018), well, it has been a clusterf*ck , went from episodic to chronic. Or that's what my new neurologist says (the one that gave me the diagnose retired). I have 4-10 headaches per day, at least 6 days a week. I even ended up last month at the hospital for a nice 4 day "vacation". So, right now I'm desperate and going slightly crazy. My new neurologist switched my meds to Veparamil (160mg now, we are upping it up gradually), because topiramate wasn't working anymore and the side effects were... not pretty. Got a new and shiny oxygen prescription (finally!), and switched to eletriptan too. (Sumatriptan is not being sold around here, apparently is too expensive for the pharmaceuticals companies to produce/import) The thing is... like i said before, I'm desperate, I just want this thing to stop, I'm tired all the time, can't sleep, can't focus, can't do a thing. I know... I know, this might take a while, with the new meds and all, but that's how I ended up here, looking for more options. I've been reading and I'll definitely check the vitamin D3 regimen, but I'd like to know if I'm missing something. (My noob self will keep reading after I sleep a bit, 10 am and already had 3 headaches, not a good day). That being said i will apreciate any comments, or thoughts that you fellas might have. Cheers! PS: Just to complement, my dad had clusters for 2 years, and then just stopped. And i've been visiting neurologist since I was 5 (also have episodic migraines). Yay genetics (?). PS 2: Sorry if this message seems to be kinda all over the place, I'll probably edit it later. Oh, and btw, english is not my first language, sorry if i made any mistakes.
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