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missray136bitters@yahoo.ca

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Everything posted by missray136bitters@yahoo.ca

  1. I know I'm not the only one who uses prescribed Oxyneo or Tramadol to treat their various chronic pain conditions. In Canada some time this year they plan to implement random drug testing on patients who are using opioid pain killers. Which is fine, personally I think it's a little degrading and invasive, but I guess I can see where they are coming from, if they are trying to cut down on drug trafficking. But I don't agree with how hard they are making it on people who actually need the medication to funtion. More and more doctors including mine are forcing us to reduce and even stop our treatments because of the attention it draws from the government when they prescribe it.
  2. I know I'm not the only one who uses prescribed Oxyneo or Tramadol to treat their various chronic pain conditions. In Canada some time this year they plan to implement random drug testing on patients who are using opioid pain killers. Which is fine, personally I think it's a little degrading and invasive, but I guess I can see where they are coming from, if they are trying to cut down on drug trafficking. But I don't agree with how hard they are making it on people who actually need the medication to funtion. More and more doctors including mine are forcing us to reduce and even stop our treatments because of the attention it draws from the government when they prescribe it.
  3. Thank you :), That definitely helps, they have me on 800mg of modafinil a day and it still isn't working. I went to see my doctor who thinks they my be seizures, but I don't think their seizures.He's sending me for an EEG to look further into that. He is also sending my back the the sleep clinic for a second sleep study as well though. The first time I went I was one sleep patterns shy of type 1 so they diagnosed me as type 2. Im also keep getting the butterfly rash on my face, but I think that's an autoimmune thing, I hear its common with fibromyalgia and lupus.. Do you suffer from a cluster aswell?
  4. Hi, well I don't have the same clusters as you do, but I do have chronic migraine and narcolepsy with cataplexy. The cataplexy is new, scary. But we do have some things in common lol, I once had a migraine last 3 month's. I would have ate my own hand to make the pain stop. My neurologist said in order to avoid the migraine or in your case headache is obey the rules. Eat regularly, most of the time its set off by low blood sugar, avoid harsh light like florescents avoid using the computer or your phone for long periods of time. Avoid harsh chemicals, cleaners and perfumes, anything that may aggravate your headache. Unfortunately this is something you would have to do regularly. Also avoid caffeine, alcohol and anything else that my irritate your conditions. And for natural remedies it helps to use rosemary and lavender as aroma therapy. I use two drops of each in a roller with liquid coconut oil and rub it on my temples, or you could put a drop of each on a cotten ball and just smell it. It helps. I hope this helps you.
  5. I can use some advice on how to handle these symptoms. I was diagnosed with multiple allergies when I was a kid which isn't unusual, but then I had chronic migraine by the time I was 10 displayed symptoms of fibromyalgia by the time I was 12 diagnosed with fibromyalgia by the time I was 18 then diagnosed with narcolepsy type 2, 4 years ago but now I am starting to have "episodes." When ever I get stressed out I get really weak, to the point I cant even move. It's really scary, I cant move. Im awake but I can't really respond to whats happening around me. It lasts about 5 minutes to 30 minutes. I went from having this happen once every two weeks to once every two days so I scared it's getting away from me and I don't know how to get a handle on it. Does anyone else have autoimmune clusters or narcolepsy? Please let me know what you think.
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