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ClusterBusters

SoCalCH

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SoCalCH last won the day on September 23

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About SoCalCH

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  1. SoCalCH

    Long cycle, bad day

    Interesting stuff @Siegfried! Thank you. Think you may be right. The pain did eventually subside ~16 hours in and feel ok today, if a bit drained.
  2. SoCalCH

    Long cycle, bad day

    My acute treatment is o2 and caffeine as need be. Today neither has worked to do anything but temporarily reduce the pain. I've had little success in busting to break my cycle, though I've tried many times. Helps prolong remission for me though. I'm thinking about maybe just one HBWR seed to abort.
  3. SoCalCH

    Long cycle, bad day

    Been somewhere between a 6 and an 8-9 for 10 hours now. O2 just temporarily reducing pain. Does anyone have any ideas?
  4. SoCalCH

    Long cycle, bad day

    This has been the longest cycle I can remember having, coming up on 3 months. Over the last week I have had a number of pain free days interspersed with some mild/moderate pain. Last night I got two hits, both on the milder side. Woke up this morning with some mild cluster pain that I couldn't quite kick. This eventually turned into a very painful attack. It will not fully subside despite my best efforts. I've been awake for ~7 hours and have not had one PF moment. Even when the pain goes down its above shadow level. What gives?
  5. SoCalCH

    Baclofen

    @CHfather Most definitely. Seemed noteworthy enough to make a record of and sparsely discussed at any time on the board.
  6. SoCalCH

    Baclofen

    Update on this in case it ever helps anyone. After taking baclofen for a couple nights I actually got a few pain free nights without any form of medication. Two nights ago I was back to my usual number of hits which I attribute to using some cannabis before bed. Last night I again used 20mg baclofen and slept for 11 hours pain free. Woke up with very minor headache aborted in ~5-10 minutes with oxygen and energy drink. Likely will use the baclofen through the weekend and try to go without starting Sunday night to see if I can get back to PF with no drugs.
  7. @mikeh2017 At the risk of beating a dead horse, you 100% must get oxygen. It is the only thing that, for me, makes this curse manageable. I hope you're keeping your head up today and enjoying whatever pain free time you have. That's really the only way in which I feel I'm winning the battle. As for your original question I just try to immune my wife and family as much as possible. That becomes more doable with an effective abortive. Doesn't hurt that my attacks are nearly all while my wife sleeps. Best of luck and keep coming back.
  8. SoCalCH

    Baclofen

    Took some Baclofen a couple nights ago for neck tightness and noticed that my nighttime hits were less severe and more easily done away with. Some were gone by the time I walked from my bedroom to my office where I keep my oxygen set up. Last night I took 20 mgs Baclofen before bed and slept through the night for the first time since my cycle started (other than busting nights). Has anyone else here tried/had any success with Baclofen? I see at least one small study that showed results.
  9. SoCalCH

    When do you consider your cycle over?

    Like looking in the mirror
  10. SoCalCH

    When do you consider your cycle over?

    @jon019 got a real bad off-schedule hit today. Hoping that is my screamer!
  11. Episodic sufferers, when do you consider your cycle over? I'd like to get some exercise, which is a huge trigger for me.
  12. SoCalCH

    Becoming unmanagable

    Get off the sumatriptan ASAP. Most believe, as do I, that while providing short term relief, it makes things much worse. The O2 is a godsend. There are other things out there that many have found help, at least according to my research. If you can't try MMs or the seeds you may want to go that route. Good luck.
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