eagleswings

WOOHOO! Thank you to the moderators who put so much work into keeping this going! The forums are a wealth of resources but mostly amazing people who are helping those in need to connect to the information they need. Love you guys! Thank you! I don't post often but have read and gotten many answers and resources along the way of my own journey. And when I have posted or commented- the answers come quick!

Hi all, I'm Anna and I help manage Clusterbusters ClusterBuddy program. I have a request BUT I also wanted to take a moment to provide a bit of information as well about the program. My request is I currently have a need for more chronic clusterheads who have lived experience and feel up to helping someone newly diagnosed or has newly found Clusterbusters and really needs someone who "gets it" and can help them find some things that may help them- they may not have a doctor who knows how to prescribe correctly, may not know what to ask for, or may just need a listening ear. So a bit about the program: ClusterBuddies is a peer-to-peer and one-on-one program that connects you with a supportive, empathetic, knowledgeable, and experienced volunteer who understands life with cluster headache and can say, “I’ve been there too.” We provide monthly groups where we explore topics or share our experiences of helping someone else. You can reach out to me or another member of the team at any time. If you would like to come alongside someone and be their Buddy (we have a strong need for chronics, but episodics and those who have experienced both are welcome to apply!) https://docs.google.com/forms/d/e/1FAIpQLSeFvIXjreXUQ685AYZ0y0ehxCMOLFr3ODw2JOHY8SgvSF1xZA/viewform If you are that person that needs someone who gets it - you can apply here - no one should go through this alone- and we know many have never gotten to speak with another person with cluster headache- we want to connect you. You can apply here: https://docs.google.com/forms/d/e/1FAIpQLSet22ryEOeToWOlr6yLXXJsziCfnsPpl3P4QyY2qjVuPNV6lw/viewform

I'm in Indiana (near Louisville, KY) and I have my O2 approved by my Medicare plan. My O2 company refused to run it at first, I told them to humor me and they called within 24 hours saying it was covered (they were shocked...I was not). Anyway different regions can be different, ALSO make sure the O2 company runs it- ask them to show the denial