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Blair

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About Blair

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  1. Started the D3 regiment this morning with the verapamil (40 mg x6) and Depakote (250 mg x2). I noticed that the fish oil was a little tough on my stomach, but I'll be better about eating more food. It's honestly hard to eat as much as I feel I need to consume to support this dosage of pills, vitamins, etc... Also working on finding a new neurologist - and more immediately - a script for O2. I bought a can of the boost oxygen from amazon which I imagine will do little, if anything.. But at this point I'm willing to try anything. I'll take your suggestion ChFather, regardless of its effectivenes
  2. Thanks everyone for the help. Yesterday was another tough day. Sorry for being absent. Spoke with my neurologist - he prescribed sumatriptan in a nasal form so I will try that for the first time. Only having 6 sprays a month makes me nervous. Do you recommend using just one spray per headache and using it on the side of the cluster? Or is it true I need to take 2 - one per nostril? Neurologist suggested I try O2 off amazon and, if it works, he can get a script from my insurance.. Does anyone have amazon recommendations? I also mentioned the D3 regimen. Neurologist didn’t k
  3. Thank you Chris. I’ll look for the D3 regimen. I’ve been on prednisone for about 2.5 weeks - 6 bills a day. I’ll take a look and chat with my neurologist. Jon - I’ve heard great things about oxygen therapy but haven’t had the opportunity to try it. It sounds like it gives moderately faster relief, which would be a godsend. I have a similar concern about so many medications - id like to know which one works in the future. I’ll see how feasible oxygen is with my insurance.
  4. Thank you.. it’s comforting to know there are others out there who know what it’s like. If there are treatments or medications you’ve found successful that maybe I should try, I’d be grateful for your advice. I haven’t begun perusing the site yet, but hope to do so tomorrow.
  5. I’ve been suffering for the past month or so from a particularly horrible cluster headache cycle and feel completely and utterly drained - emotionally, physically, and mentally. Feeling pretty alone and hopeless. I was diagnosed with episodic cluster headaches my sophomore year in college - little over five years ago - after I experienced a headache I thought would kill me. Ever since then, I have struggled with managing them. Typically once or twice a year I get a cycle, and it lasts for 3-6 weeks. This year, I had a cycle in January and again, most recently, for most of September and a
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