Happy new year!
I am very new to this site. But very thankful to have found it. I was recently diagnosed with CH last year after undergoing my 4th nerve ablation (burning the nerve in the back of my head). Multiple doctors have thought it was pinched nerve due to multiple football head injuries. Anyways needless to say after 20 years of excruciating headaches I have arrived at CH.
I just started my CH cycle about 2 weeks ago where I didnt take any meds once one hit as I was travelling on vacation. They came at 4am and 11am, with the morning ones lasting 2-3 hrs or until I passed out and the 11am ones being sporadic in length (30 mins to in and out for 5 hours, but mostly 1-2 hrs). This was the first time I didnt take any drugs, typically i would take morphine and other narcotics like it was like candy to try and kill the pain but have now realised there is a good chance these never worked it was just the CH running its course. To say the least it was extremely hard to be "sober" and go through this.
Once I got home I used Sumatriptan ( 6mg cartridge) at 4 am for my typical headache it was done in 5 mins. I started crying from joy.
That day I didnt get one till 6pm, I waited a bit to see if it was really going to come and when it did I did another injection... bam it was gone. I started messaging my family like I won the lottery.
The next day (today) the pattern changed, got a headache at 2am, 8am, 2pm, and one that seems to be coming now. I used a shot for the last 3 but worried about how this pattern is developing.
I am 2 weeks into my cycle and from what I can remember they definitely ramp up in frequency so I dont know if this is just my cycle or because I am using this drug. Also, as I mentioned before I have typically been extremely doped up throughout my cycle so my memory isn't the greatest.
I would appreciate peoples thoughts on this and whether or not I should be concerned. I also will continue to look through the forum to see if someone has had a similar experience and how they handled it.
Thank you for your time.
Sorry realise this is under the wrong topic... dont know how to move it sorry