Jump to content

Steve A

  • Content Count

  • Joined

  • Last visited

  • Days Won


Steve A last won the day on January 31 2020

Steve A had the most liked content!

Community Reputation

5 Neutral

About Steve A

  • Rank

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. So I got all my D3 stuff today and I’m set to start that on my own. I did mention it to her during my consultation and she said she had heard about it but didn’t know enough about it. She didn’t poopoo it and said that it didn’t sound like it would hurt. She prescribed a prednisone taper which is pretty mild because I am likely nearing the end of my cycle ( at least I hope so) and I’m going in tomorrow morning to Get my three Emgality shots. I’m going to confirm with her that she sees no problem with me doing the D3 in parallel with this. I realize that I won’t know what ultimately “fixed” con
  2. I wanted to take a second to send a HUGE thank you to this website and it’s moderators. Four weeks ago, after a 15 year absence, my CH returned. And with a pain level I don’t remember. I didn’t know what to do and couldn’t remember my drugs I used to take or if there were even any changes in prevention and treatment. I went to my own general practitioner and as I explained what was going on, he began thumbing through his drug catalog, gave me a referral and that was that. I called the doctor he referred me to and he couldn’t see me until the end of February, clearly (or hopefully) beyond my
  3. I haven’t but in the past I’ve been told it’s low and took a D supplement. Wasn’t in a cycle at the time. I forwarded the white paper to my doctor yesterday along with instructions on how to write the script for oxygen. While I get the regimen and what supplements are needed I don’t get the loading part. How does that work? Is that the 50,000 D pill? I didn’t order that one but will if necessary.
  4. I’m seeing that this time around. I had one at 9:00 last night, one at 11:30 and one at 1:30am that hasn’t fully gone away yet. My D3 supplies come in today so hopefully that helps. Because I am running out of the sumatriptan. Sent my doctor the instructions on how to prescribe O2. This sucks.
  5. I am a month into my most recent attacks (after a 15 year hiatus) and have a question about the predictability. In the past, and for the most part during this most recent attack, I have been able to count on my visitor arriving around 8:00pm each day. Yesterday it happened at 2:45pm and today at 8:00am while I was driving. I don't remember the attacks going off schedule like this and am wondering if anyone else sees this? I'm 95% certain that this is still the CH I have experienced and been diagnosed with, but thought I'd check. I am currently utilizing sumatriptan nasal spray and just pi
  6. I’m hoping to discuss O2 with the neurologist later next month. Hopefully I’m over this bout by then. For now the sumatriptan is working. I’m only using the meds on the first attack because it’s the worst one. The other one or two aren’t as bad and I can ride them out. Thanks for the tip on the GoodRx. I’ll definitely check it out.
  7. Nasal sumatriptan is working. But this time around I’m getting 2 to 3 daily. Used to be one every other day in previous cycles. I only use the spray on the first one and ride out the other one or two which thankfully are only lasting 15 minutes or so. Sad part is my insurance company will only cover 12 doses in a 24 day period. Not gonna cut it for a CH sufferer. Pharmacist told me to have my doctor prescribe the injectable form as a work around. Which he did. But insurance isn’t buying it. So if I want the miracle drug that works for me, I’m out of pocket $2,000 for shots or $900 for spray. D
  8. Thanks Batch. Went to my primary care today and sadly I knew more about clusters then he did. I left with a prescription for a nasal sumatriptan and a referral to a headache specialist nearby. I’m gonna read up on the D3 deficiency at your suggestion. Thanks much.
  9. Hi Everyone, I am a 51 year old male who hasn’t had a bout for 15 years. Prior to that I suffered once a year for a month as is typical. Late last month they started again. Anyone else experience such a long time in between? And if so, did it start back up with the same patterns? Did it come back every year? Just want to know what I am in for this time around. Also, the duration of the attacks seem briefer for me. Usually from onset to complete relief is only about a half hour. But last night had two attacks in the span of three hours. That was new. Last question, is O2 effective for half h
  • Create New...