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Everything posted by Edgar

  1. Hi All, thank you for your replies I have been diagnosed with Cluster back in 2002 or 2003 and had every year 2 cycles per year, every cycle 6-8 weeks with 2-4 attacks daily. I was given triptans (imigran nasal) and naratriptan to block the attacks and it worked fine. The doctors told me that my cycles are too short to put me on something else. This was until 2013. In 2014 I had Remission the whole year and the next cycle came September 2015 and was long (10 weeks) and really bad in terms of intensity of pain and number of attacks. This time my neurologist put me on 2x naratriptan daily + 480 mg verapamil retard (2x 240 mg). After a week on verapamil it got better and in November the cycle ended. In 2015, 2016, 2017 and 2018 I was completely free of pain, full Remission, 4 years long. I almost forgot how bad the whole thing was. Until Early November last year when it all started with weak attacks at night time and worsened by beginning of December with really painful attacks 2-3 times daily. Again Naratriptan and verapamil, until Christmas. Now I am pain free again, so the cycle has ended, but there is this weak background feeling around the eye, that makes me worry. I have MRI on February 14th, I hope it will be OK and these are just the last signs of the cycle... I used Oxygen only once, when the pain was so bad, couple of years ago I went to the emergency and they put me on O2, which I think to remember helped me really. I'm thinking about taking for some 2-3 days again verapamil to see if this background noise will disappear. Thank you all for your suggestions
  2. Hi everyone, I'm new here and please forgive me if that topic had been already discussed, but I couldn't find anything in the General Board. After 4 years Remission (!) I had my last cluster cycle last November and December. At Christmas I had the last attack. I was on naratriptan 2x daily + verapamil. After the cycle has ended I experience almost daily a weak background pain at the same side behind the eye and I don't remember having that in the past. I started to think about tumors etc., so really any similar experience shared may help me understand better what is going on. Thank you all, I wish everyone less pain, blessings.
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