I'm 67 years old and new to CH (about six months, 3 months chronic). I can't thank you all enough for just being here. I was fortunate to have an Urgent Care PA that actually nailed the diagnosis in one visit and referred me to a local headache center. Lucky to have both within 10miles of me. The doctor at the headache center was amazing with a full understanding of the difference between clusters and every other type of "headache" and she's up to speed on every type of treatment. She's willing to fight for her patients when insurance companies resist as well. I think I'm in love.
I can't imagine how some of you have lived so many years with this, and some largely undiagnosed for years as well. My hat's off to you true survivors.
So anyway, I wanted to introduce myself and thank Bench (did I get that right?) for the vitamin regimen - I had the first full night's sleep in 3 months last night after just a week of poorly implementing the list. I'm in a rural area with not-so-well stocked drug stores and had to order most everything online. It's taken awhile to get all of the vitamins together in one pile. I'm still waiting for the K2 but the most significant effects seem to be coming from the D3. I really don't care, it's working so far even without the K2. I've been getting 1-2 major attacks during the day and 3-4 at night (lesser in intensity, but won't let me sleep) and I've had only 4 daytime attacks during the last week into the regimen. Nightime attacks have steadily decreased until last night - nothing but pure sleep. Doesn't sound like much but any day without them is a blessing. No shadow this morning either. Keeping my fingers crossed, and thanks again to everyone here.