Ahhh so interesting! I was prescribed the Maxalt and Cambia with my last episode in 2014 from my original Neuro, so I had requested it as an option to the consortium of other drugs I’ve been using. I wonder if the research has changed since then? Almost every night for the past 2-3 weeks, I have been using the Maxalt and O2, but will stop the Maxalt now!! For the monsters, if I haven’t taken any other meds that day, I’ve used the sumatriptan injection - good to know on reducing the dose, will definitely look in to that! I used one Methylpred 4mg pack at the end of December and it broke up the beginning of the cluster, only for it to resurface in Mid-Feb, so at the beginning of March I started another Methylpred 4mg pack. My doc did just write me a script for 8mg methylpred pack and for verapamil because of how badly I’ve been struggling. I think you’re right though probably taking too many competing medications which could be exacerbating the episode... that said, I think I may just take a few days and go back to my old heat pack fix and hold off on the steroid pack and stick with the sumatriptan and give the O2 another shot - verapamil will be my last resort in a few more weeks as it has been shown to cause a higher risk of neonatal seizures. I’ve been using 2000L tanks and alternate the regulator between 15 & 10 LPM... am I doing that right? Will also look in to the D3 regimen!! Thank you SO MUCH for all of this information - you have been a great help! Please let me know if you’ve got any other tips based on the additional information I provided below - I’ll admit and it’s probably obvious in my original post that I’m a novice at actually treating them - I’ve had them so long and just always deemed them untreatable. Thanks again,
Catherine