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Brian McAndrew

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Brian McAndrew last won the day on May 27 2020

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  1. Crossing my fingers still with this myself. It has been very effective but there have still been a few times that put me on oxygen for several hours. Varapamil worked not bad at the start for me, then the side effect of getting loss of breath and easily exhausted became more uncomfortable. Even taking magic mushrooms at the start of the cycle worked amazing to blow the cycle each time for a couple years, started not working so well. This condition was brewed up in hell by some evil witch
  2. I'm pretty much chronic as well. I have 2 very heavy 2.5 month cycles and in between cycles I don't go more than 3 or 4 days without a problem. I'm 66 and had it all my life. Treatments for this seem to be different for everyone and also they can randomly not work at all some times. I was very lucky to find the quercetin for me. I have still had some bad days this cycle that I needed to get on my oxygen concentrator. good luck with your search for something effective.
  3. HI Rod. I'm new at this with the quercetin. I started at the start of my cycle on about April 15. I sounds like our cycles are very similar in frequency and intensity. I can really feel your pain. It sounds like the quercetin is starting to work though... I started the quercetin with a 500mg cap in the morning for the first 3 weeks then got a mild attack (rough night and morning) and upped my dose to 1,000mg in the morning. I sometimes do another 500 in the evening if it looks like I'll need it. I have had about 5 or 6 mild attacks since I started using it and those were easily taken care of with an 02 concentrator that I use instead of a tank. Have you ever tried or thought of using magic mushrooms for a treatment. I live in BC Canada and it is not hard to aquire and the laws for it here are very relaxed. Using it for medical would also help in any legal matters. I am not sure of your situation, opinion on it or whether you have heard about it. A small dose, enough for a light 2 beer comparable buzz, lasts about 4 hrs, will in 4 days time, kill the cycle. This condition is crazy though, I read a report by a doctor who observed that during heavy solar activity, medications were less effective and the cycles would start earlier and end later. I have observed similar situation with some of my bigger attacks that over rid the medications. The Quercetin is quite safe and it should be ok to up your dose past 1,000 mg per day as I have sometimes. try morning and evening dosing. Keep in touch and good luck brother
  4. Good Luck. Don't do the Verapamil while doing the Quecetin though. it intesifies the effects.
  5. Thanks for those links as well Spiny. I had belonged, for a short while, to another cluster forum around 2010 when I was finally properly diagnosed. I didn't want to go saying something unless I was confident. I also did a search on the site to see if it was mentioned already before I posted. I did a lot of research and was very cautiously optimistic about it. It took a week of completely pain free time before I even started to let myself believe it. I have been disappointed enough times thinking I had something that worked and then, boom. The regular dose was supposed to be 1,000mg. I had 500mg caps and decided to do half the regular dose to try it out. It worked for the first 3 weeks of the cycle before I increased to the regular 1,000mg.There have been a couple times that I took an extra 500 in the evening before bed but only a couple. Like you say, it fits the positive-risk-benifit-cost niche. cheers
  6. I am sorry for your friend. I don't know what research would support that kind of treatment. Thank you for your comment and concerns. I have done much research and don't take things lightly. 1,000mg per day is a normal upper limit dose. If taking for more than 12 weeks it may be good to consult a doctor. Although there have been no studies to say it is not safe. I understood the medications that I was being prescribed and that Quercetin affected the same receptor. I am more confident of an entourage effect medication than a targeted pharma type. In doing anything though check with doctor if you are pregnant or taking any other medications, .... normal precautions for anything. I have my family and close friends on 500mg a day for its possible Covid19 protection. I take 1,000mg Vitamin C to help the quercetin to metabolize. here are some links on it and covid19 as well https://www.mcgilltribune.com/sci-tech/montreal-researchers-propose-a-treatment-for-covid-19-170320/ https://regenexx.com/blog/coronavirus-episode-9-can-quercetin-help-covid-19/
  7. here are a couple links on it for the Covid19. https://www.mcgilltribune.com/sci-tech/montreal-researchers-propose-a-treatment-for-covid-19-170320/ https://regenexx.com/blog/coronavirus-episode-9-can-quercetin-help-covid-19/ I don't have any research on quercetin for cluster headaches, it was just putting a few things together and then checking it out on myself and found that 1,000mg in the morning each day now that I'm in my cycle, has brought a normally killer time, to a near stand still. It can take 20 minutes or so on the oxygen concentrator to kill an attack. Sometimes it just keeps it at bay and stops it from getting worse, but it may still hang for several hours. It is a very well appreciated therapy for me. Got it beside my bed. Since taking the quercetin, the couple times I did have a problem, it went away very quickly on the O2 concentrator.
  8. I am new to this forum and before posting, I did a search for the word quercetin, incase someone else has stumbled upon this simple substance that puts close to a full stop to the headaches. I have been taking 1,000 milligrams of quercetin, a natural bio flavanoid under natural health products and have been headache free so far, 5 weeks into my 10 week cycle. below is a short version of my story. I am 66, living in BC Canada and have Cluster Headaches all my life, first hospitalized in 1972 at 17. I get a 10 week cycle, twice a year, pius disturbances outside my cycle. I wasn't properly diagnosed till 2010 when I was 56. I take melatonin at night, learned about my triggers and how to avoid them. I discovered magic mushrooms on a forum and have been able to access and dose when I needed. Mushrooms worked very well but aren't a 100% and it wasn't always comfortable for me to take them. Also it is not for everyone. I had gone to a neurologist and was put on Varapamil, as a preventative, a blood pressure medication that affects the ACE2 receptor. It worked somewhat, but had unpleasant side effects, so I stopped it a couple years ago. I had been following the Covid19 situation and stumbled across 2 Canadian doctors researching Quercetin, a natural bio flavanoid as a preventative prophylactic. They found that it blocks the virus from being able to enter the body thru that ACE2 receptor and also interferes with the protein cycle of the virus. It is now in the top 5 hopefuls with 80 other things in 60 day trials in China. I ordered some for that reason but also to check if it would help stop my cycle as well. I was at the start of my cycle, mid April to July 1, had a few episodes already and the quercetin arrived so I started on 1 @ 500 milligram capsule a day. Right away and for 3 weeks I didn't even get a hint of a headache attack. After 3 weeks I got a low level attack at night that went away very quickly when I put myself on oxygen. (I have a concentrator by my bed). The next day I increased to 1,000 (2 caps) a day and it is now more than 2 more weeks later and I have experienced only 2 more very mild and short episodes. I have found it to also have several other healthy effects on my body and well being. I was cautiously optimistic at first, as this is a very persistent condition, but I am feeling like that ever present threat is disappearing. This is a safe, non toxic natural supplement like taking vitamins. Always consult a doctor for any complicatons with other medications or pregnant or..... It cost me $75 CDN for 200 caps. $0.35 CDN each. Can't get much better than that.
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