CyMan

I can't say what effect it has or hasn't on CH but I have been taking 3gm a day for the past 15 years and I almost never catch a cold. I also followed the studies into vitamin c and cancer treatments as well as heart issues and although I'm no scientist i swear by vitamin c. Having watched your link I'm off to have an extra vitamin now as I happen to be in middle of a major CH season and will literally take a lead pellet if I thought it would help

I find that once my hands reach for my skull to start the pressing the intensity increases its almost like my brain wants to punish me for pressing the vein beside my eye. It throbs like it's abt to burst. So as weird as it sounds I almost play a game of trying not to reach for my head but I know once the intensity reaches a certain level all this goes out yhe window. I also do a cranial squeeze on top left side of the skull and sometimes that helps with ice bags. In truth the damned thing has a mind of its own. It fades as quick as it starts but my seizures tend to last 60 minutes and peak around 20 mins reducing at around 45 to 50 mins. Yesterday I started having day attacks of 20 or 30 minutes duration too. I was so glad it only lasted 20 mins. Last season I was having 2 one hour sessions a night and two a day and I was just a sack of meat. Drooping eye bruised face from pressing and so depressed

I get given o2 when I go to a&e as the doctor won't or I should say can't prescribe it for home use. I live in England. but tbh it doesn't really do a lot for me. I compensate by heavy breathing when the seizures start and try to get as much o2 into my body as I can and sometimes I think it helps other times nothing. I pack a plastic bag full of ice and just moan until it passes. People tell me to do various things like mind control and calming thought but they just don't understand that when it's in full flow I can't even think of my own name. I don't need to tell you guys what it's like but other people just assume it's a migraine. Like snowflake says the fear of sleeping is what sets in. Past 3 days and nights I have slept a total of 10 hours. Just a wreak of a body atm and sometimes feel like I'm going insane

Don't feel too lonely i also had a massive attack last night and 2 light attacks. Today felt like I was beat. I tell myself during the attack that this will pass. I keep groaning and trying to remind myself it will pass. Sorry I can't offer more but I feel your pain