JessNapier

In place of our in-person event, Clusterbusters is hosting a virtual conference Sept. 24 - Sept. 26, 2021. We are disappointed to miss seeing you in person but excited to share information and community with you virtually this year. This event is free and open to anyone who would like to attend, but you must register: https://CBConference2021.planningpod.com

Hi @Luis! @eileenbunny — will some of the session recording's be shared at a later date?

There have been so many recent studies on cluster headache. Dr. Emmanuelle Schindler will be giving study updates at the 2020 conference. She is a board-certified Neurologist at Yale School of Medicine and has expertise in headache medicine.

Dr. Robert E. Shapiro will be giving an advocacy and oxygen workshop. He is a Professor of Neurological Sciences at the Larner College of Medicine at the University of Vermont, where he is Director of the Division of Headache Medicine and the UCNS Headache Fellowship. He is the Founding President of the Alliance for Headache Disorders Advocacy, the Past President of the Headache Cooperative of New England and serves on the Board of Directors of the American Headache Society®.

2020 speaker list includes a veteran to the cluster community Bill Mingus! He has been active in the online community and was a member of OUCH USA for many years. Considered by many as an expert on the use of oxygen in the management of cluster headache, Bill will share on “Oxygen - Making It Work For You. A Hands On Demonstration and Discussion.”

Also speaking at the conference will be Jonathan Leighton, PhD. He is is the Executive Director of the Organisation for the Prevention of Intense Suffering, a Swiss think-and-do tank he founded in 2016. OPIS engages in education, advocacy and communication on preventing the suffering of all sentient beings and the promotion of ethical governance.

** ACTION ALERT ** If you live with cluster headache, we need your help! The Center for Medicare and Medicaid Services (CMS) is soliciting public comments to determine if home use of oxygen for cluster headache is reasonable and necessary under the Medicare program. The deadline to share feedback with CMS with the hope of approval for in-home use of oxygen for cluster headache is Sept 16th. #02forCluster Check out this guide to help submit your public comments: https://bit.ly/3lCoCOf

I'll keep posting our awesome speakers and their presentation topics in this thread.

Hi @igdc! @eileenbunny -- are you able to share timing info?

@eileenbunny — Can you help confirm that @Georgia Schmitt is registered?

Hi @Jteira! Thanks for flagging this! Did you register through this link? (https://events.r20.constantcontact.com/register/eventReg?llr=asfwt7iab&oeidk=a07egkpa2ek0382d233) You should be able to pay the registration fee here via PayPal or credit card. Let me know if it does not work.

2 Weeks Away from the 15th Annual Conference! Like everything, we're going virtual this year. Make sure you register in time to receive your welcome bag in the mail. Speakers & topics are listed online and also in the images below. Register: https://clusterbusters.org/event/15th-annual-cluster-headache-conference

2 Weeks Away from the 15th Annual Conference! Like everything, we're going virtual this year. Make sure you register in time to receive your welcome bag in the mail. Speakers & topics are listed online and also in the images below. Register: https://clusterbusters.org/event/15th-annual-cluster-headache-conference