Hi, this is my first post so take it easy on me :-)
I have suffered with CH for about 20 yrs, but was only correctly diagnosed about 6 yrs ago.
I had an addiction to Advil Cold and Sinus pills as a preventative measure for about 10 yrs, 3 extra strength with breakfast and 3 before bed.
Looking back, I don't think they worked very well. I had an Ear/Nose/Throat specialist perform Sinus surgery to try to alleviate the pain, to
no avail. My GP, after diagnosing me, prescribed me Zomig nasal sprays and as a preventative measure, Verapimil Slow release, 120mg/day.
2 yrs ago, the Beast visited every day for a month, and I was taking Zomig every day. I asked my GP if I could take more than one, he said that was fine.
After visiting a Pain Clinic, I was told that much Zomig was contributing to rebound headaches and was immediately taken off Zomig.
The replacement drug is called Cambia (diclofenac potassium). You mix the powder with a few tablespoons of water and drink it.
It only works at the first sign of a CH and is useless when the headache is in full swing, so not usefull when the beast wakes me up in the middle of the night.
Last year I was prescribed Oxygen but had limited success. This time around I was prescribed a higher flow rate with a non-rebreather mask,
hoping that makes a difference.
One of the remedies my ENT specialist once offered up was to spray lidocaine in my affected nostril, to freeze the nerves, I had some success numbing that area but
then he was reluctant to prescribe it for some reason. The title of this message is Sucking Ice Cubes. The reason is I have discovered that as part of reducing the pain felt, sucking ice
cubes mimicked the lidocaine effect. I found that by sucking ice cubes and pressing them into the roof of my mouth, it would, over a period of 20-30 minutes, "freeze" a nerve in my sinus cavity that would reduce the pain and help chase away the beast. It often works in conjunction with icy cold compresses to the left side of my face. Sometimes I even find sucking ice cubes can stop a shadow from building into a full blown CH. I bring a Yeti 30oz mug full of ice every day to work in case I need it, it keeps the ice all day in my lunch bag all day.
I don't know if anyone has tried this before, there's just soo much information here.