Jump to content


  • Posts

  • Joined

  • Last visited

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

itsfatboy's Achievements


Apprentice (3/14)

  • Collaborator Rare
  • Conversation Starter Rare
  • First Post Rare
  • Week One Done
  • One Month Later

Recent Badges



  1. i will b e getting tanks from a medical o2 supplier. that mask looks good, but it $25us and shipping is $32us , that’s over $70Canadian i wonder if a similar mask is available to us Canadians.
  2. So. I wrote that blurb at the office and I appear to have skipped over some things. My original scrip for O2 was 8-12L /min, as was prescribed by my neurologist. My GP has changed the scrip this time to 15L/min with a non-re-breather mask, which I believe is what you're suggesting i should use. My Verapamil was increased last year to 240mg slow release. I was taking so much Zomig, that my benefit plan started capping it. Here in Ontario, Canada, the cost is $28 each spray. When I got below 3 boes (of 2). I would literally start to panic that I wouldn't be able to find more. When I first started Cambia, it was very effective. Just like Zomig was at first, but I was told Zomig was to be used at the beginning, not DURING a CH. Maybe my GP didn't have a lot of experience in prescribing for Cluster Headaches, but I really don't think a lot of GP's have that experience. As for the energy drinks, is there a specific brand or certain product within a brand line? Or just plan old redbull ? I am a little concerned that an energy drink in the middle of the night, I may not get back to sleep? Mind you, the quality of sleep after a CH is pretty sh*tty.
  3. Hi, this is my first post so take it easy on me :-) I have suffered with CH for about 20 yrs, but was only correctly diagnosed about 6 yrs ago. I had an addiction to Advil Cold and Sinus pills as a preventative measure for about 10 yrs, 3 extra strength with breakfast and 3 before bed. Looking back, I don't think they worked very well. I had an Ear/Nose/Throat specialist perform Sinus surgery to try to alleviate the pain, to no avail. My GP, after diagnosing me, prescribed me Zomig nasal sprays and as a preventative measure, Verapimil Slow release, 120mg/day. 2 yrs ago, the Beast visited every day for a month, and I was taking Zomig every day. I asked my GP if I could take more than one, he said that was fine. After visiting a Pain Clinic, I was told that much Zomig was contributing to rebound headaches and was immediately taken off Zomig. The replacement drug is called Cambia (diclofenac potassium). You mix the powder with a few tablespoons of water and drink it. It only works at the first sign of a CH and is useless when the headache is in full swing, so not usefull when the beast wakes me up in the middle of the night. Last year I was prescribed Oxygen but had limited success. This time around I was prescribed a higher flow rate with a non-rebreather mask, hoping that makes a difference. One of the remedies my ENT specialist once offered up was to spray lidocaine in my affected nostril, to freeze the nerves, I had some success numbing that area but then he was reluctant to prescribe it for some reason. The title of this message is Sucking Ice Cubes. The reason is I have discovered that as part of reducing the pain felt, sucking ice cubes mimicked the lidocaine effect. I found that by sucking ice cubes and pressing them into the roof of my mouth, it would, over a period of 20-30 minutes, "freeze" a nerve in my sinus cavity that would reduce the pain and help chase away the beast. It often works in conjunction with icy cold compresses to the left side of my face. Sometimes I even find sucking ice cubes can stop a shadow from building into a full blown CH. I bring a Yeti 30oz mug full of ice every day to work in case I need it, it keeps the ice all day in my lunch bag all day. I don't know if anyone has tried this before, there's just soo much information here.
  • Create New...