kmel2

Thank you all so much for your ongoing support, I used to be on 7lpm before(which was standard in my country) but now I'm on 10lpm. Perhaps the outcome might be better with a higher flow around 15lpm, but I would listen to my doctor for now and stick with 10lpm as it's still producing positive effects and helping me ease the pain (I'm female and very small so maybe that's why). And as CHfather pointed out, it was my supplier who picked up the tank size. Apologies for the miscommunication! I'm able to keep a few tanks at home so the size is not a problem for me at this moment but again, thanks to you all for the helpful suggestions.

Thank you all so much for the recommendations. Just for an update, I saw a neurologist in Toronto a few weeks ago and got a prescription for E tanks (and my health insurance covered the full cost too!.) My attacks are much shorter now thanks to the oxygen and it gives me the hope to push through the pains. Thank you all again,

Thank you very much for your suggestion. I'm a full time student in Toronto so it might be hard for me to book an appointment with her during the school semester but I will definitely put her on my list. Was she able to prescribe you the oxygen therapy? Thanks again for your suggestion!

Dear CHfather, Thank you for your message and all your advice. Yes, I've looked at the list of recommended doctors but I thought people here may have newer information/recommendations. I will definitely check the facebook groups and the information about using welding oxygen but I hope I can find a doctor who can prescribe O2 and treat me too. Again, thanks for your support and I'm grateful that this community exists.

Hi all, I was diagnosed with CH in 2016 and was utilizing home-based oxygen therapy (Oxygen concentrator 7L/m) back home. But I moved to Toronto recently and I'm having a really hard time finding a neurologist, getting O2 prescription, etc. I'd really appreciate it if someone could recommend me a doctor in Toronto (preferably in Downtown) who has experiences treating CH patients and is willing to prescribe O2. And for those of you who got O2 prescriptions in Toronto, would you mind letting me know the vendor and the cost? (My health insurance would probably not cover it but I'm desperate to get oxygen because it is the only thing that seems to help me and shorten the duration of my attacks) Thanks so much for reading and for your help!