I’m so glad I found this forum. I’m a longtime sufferer but having first cluster cycle in 3 years. Typically am able to abort the attacks from nerve block and prednisone taper. This time I’m unable to see the doctor for a shot until next week and I’m starting to panic. Typically my CH cycle begins with shadows, tingling in my teeth and then after a few weeks the attacks begin for a 1-2 week period and then subside. This one feels different. I’m very lethargic, almost constantly dizzy (vertigo feeling) during the day and then have moderate shadows at night. This is the first time I ever felt the vertigo type feeling, so of course I think something else is wrong. Unfortunately with my other symptoms, if it walks like a duck and quacks like a duck, it’s a duck. I absolutely hate Verapamil and have been able to avoid taking it because of the effectiveness of nerve blocks, but now I’m nervous I’m on the Eve of a full out attack. I began taking 8,000 iu of D3, but I have no idea if that’s doing anything for me (any advice on this is much appreciated). I am on a prednisone taper but nearing the end, which also makes me nervous. I when I’ve been in cycle I’ve been able to control the attacks with Sumatriptan shots, but a handful of times ended up in the ER (most often not seen in time because Dr. Thinks I’m a drug dealer).. only found 1 ER Dr. who understood. I have a very stressful job in the finance world and have several people reporting to me, but feel like I’m incompetent when in cycle. Nobody understands- I often get comments like, my wife gets migraines, or I get bad allergy onset headaches, etc. - it’s very frustrating and I often feel depressed and almost a burden to my family. My wife tries to help and my kids just don’t understand why their dad is so off. I know this story is repeated many times on hear, but virtuous if anyone has the vertigo feeling and if someone could please point me in the right direction on the D3 regiment.
I appreciate everyone on this site, and after 20 years am finally reaching out.
