Hi. It's been a really long time since I been on here.
Has anyone ever had this happen or ever heard of this happen. It's hard to explain and keeping it short but I'll try.
I've had clusters since I was 17. Probably a lot sooner but not crippling. The older I've gotten the worse they've gotten. I'm 62 now. One day in my 50s I had crippling chest pains and ended up in the ER and they found nothing wrong. These pain came on as an attack and followed a schedule it seemed. I recognized the pattern. They were hitting me just like the clusters. My greatest fear now was to have both at once. Thankfully that never happened, yet. Still a fear of mine.Then one day I had the clusters start but the chest stopped. The cluster headaches were definitely the worst I have ever had. I was in agony for 2 months. One moth on the right side. I had like a days break then the left side started and lasted another month. Ever day all day and night getting an occasional 45min to an hour break here and there. When they finally stopped, my chest started again. They still come and go as the clusters. It's been almost 10 years now. No cluster headaches but now cluster chest pain. Though these can be crippling at times if they peak and you do feel like you're going to die, it's not a heartache but better safe than sorry. Back to the ER and all tests found no issues. I get these attacks regularly now like the clusters. This is a little bit easier to deal with since it's not my head. I found that with a high percussion massager in the right place on the ribs at it's start can keep it from peaking or bring it down if it has peaked but once peaked it's pretty bad and takes a while to get it down. This might of just been a prayer answered. I often prayed if I had to have these cluster headache pain, could it just be moved from out of my head to another part of my body like a leg or something. Well it looks like they moved out of my head into my upper body.
They often start in a shoulder or armpit and can quickly move across the chest. If it continues it will get into the esophagus neck jaw under the tongue. Get hot flashes heavy sweating and nausea. Crushing pain.
Ever hear of anything like this? I still can get a normal headache or sinus pain but it's rare but still scares me.
