hugecomedyfan

Hi all! Long time, no post (which is a good thing!) I unfortunately started a CH cycle a few weeks ago, and though it's been largely manageable, last night was a rough one. 3 headaches in 6 hours, each one lasting about 40 minutes. Now, admittedly I have been inconsistent with my D3 regimen, so I am assuming that is why, and I've started it up again heavily and will be sticking to it. But the reason I've been inconsistent with the regimen is because it causes some not great stomach issues, primarily stomach unease and diarrhea at least once a day. I was trying to see if I could get by this cycle without relying so heavily on the regimen because of the stomach issues(foolishly), and here I am. Also, just as background, I have IBS, so that probably plays a role into it as well. Does anyone have any experience with these sort of symptoms and the D3 regimen? Or any advice? The stomach upset, much like the headaches, almost occur like clockwork when I start the regimen. I was initially worried it could be due to too much vitamin D, but it sounds like you have to take an absolutely astronomical amount in order for you to take too much vitamin D. I'm getting bloodwork done in a few weeks, so I'll have better numbers on what my D levels are, but wanted to post this to see if anyone had any tips, insights, or just commiserate.

Hi all, I apologize that I’ve only had questions and little answers since finding this forum. Y’all have been a wonderful resource. I believe my most recent cycle has ended. I haven’t had a full blown attack for about two weeks. Lately I’ve been dealing with a shadow that seems to linger all throughout the day and sinus pressure and pain. I can’t seem to shake the sinus pain. Has anyone else experienced this? The sinus pressure and pain have gotten marginally better since my doctor prescribed fluticasone and Zyrtec D, but still definitely present. And then the shadows seem to be pretty consistent every day. I’m happy that I haven’t had any more CH attacks, but the shadows and sinus issues are still annoying. Any tips or advice? My cycle started in late September and lasted about 3 weeks. My last major attack was 10/4, with a couple of minor ones since then, but mostly been pain free since 10/17. My cycles in the past have tended to just end abruptly, no shadows or anything, so this one has been a little drawn out and unpredictable. Thanks again, all!

Thank you again, all, for the info! It is really helpful!

Thanks a lot, Jon! You’re saying there is no evidence that CH causes anomalies? I’d be curious to learn what conditions are similar to CH symptoms.

Hi all! I got an MRI on Saturday, and they found two small white matter lesions on the right side of my brain. The results said something along the lines of ‘non specific white matter lesions, roughly 3mm’. The results mentioned that this could be caused by small matter ischemia, migraine disease, vasculitis, demyelination, and Lyme disease. So a wide array of things. I have a follow up appointment with a neurologist so they can analyze the results more and better then my PCP can. Just curious: does anyone have experience with this or more info? Everything I try to research sounds extremely dire and hasn’t been too helpful. Thanks a ton in advance per usual.